Shake With Me: One Family's PD Journey
Notice bibliographique
Résumé
In this episode of When Life Gives You Parkinson's, I talk with filmmaker Zack Grant, the driving force behind the Parkinson's documentary, \\"Shake with Me.\\" The thirty-minute film was originally intended to document how Parkinson's impacted and inspired Zack's mom, Debra Magid, to return to her fine art roots and begin to paint bold, colorful, big-eyed, portraits. It turned into an intimate, authentic time capsule, capturing moments and conversations as a family wrestles with a Parkinson's diagnosis.Debra was diagnosed in 2012. She decided to keep the Parkinson's a secret from her kids. Debra explains her decision in the film, noting Zack was already out of the house, but his sister Elizabeth was still living at home. Debra said, \\"I was afraid if she thought I was sick that she wouldn't even go to college. That she wouldn't launch.\\"About a year later, Elizabeth found her Mom's medication hidden in a drawer and that secret was out. The other secret Debra was keeping was that the Parkinson's was motivating her to paint again. As a college student, she was an aspiring product designer and had a passion for fine air. Her diagnosis triggered that passion again. \\"What I've been doing is drawing faces, interpreting what the face is, and what I see in it. Kinda of telling a bit of a story.\\" Debra continues, \\"I do feel lucky to have found such a strong voice this late in life. I think Parkinson's is like a little bird sitting on your shoulder going, 'tick-tock, tick-tock.' Time is going and don't waste what you have.\\"After explaining the diagnosis to her family, it would be several more years until Debra was comfortable sharing the Parkinson's diagnosis with everyone in her life and eventually everyone in the world through Zack's film. \\"The film was supposed to be this very small piece about the juxtaposition of her art, her diagnosis and her changing health,\\" said Zack. At some point, he says the family realized it was much more than that, \\"There was this desire to have these conversations about how Parkinson's has affected our family.\\" The film touches on advancing symptoms, decisions to take more and different drugs, the struggle of who to tell, when to tell them and how Parkinson's impacts everyone in the family, not just the individual diagnosed.Today, Zack, Debra and the family are more open and honest with each other, because of the experiences they shared in making film. For Zack, the film has refocused his career, \\"I think this film was a really ambitious way of trying to get in touch with my feelings around Parkinson's. Now I am in this place artistically where I want to do more personal stories. And in fact, I don't want to touch anything that I can't find a personal way in to.\\"The film \\"Shake with Me,\\" is available for small group screenings, film festivals and for free download on Vimeo. Feel free to comment by leaving us a voice message here: https://www.speakpipe.com/WhenLifeGivesYouParkinsonsFollow me, Larry Gifford Twitter: @ParkinsonsPodFacebook: Facebook.com/ParkinsonsPodInstagram: @parkinsonspodFollow Co-host and Producer Niki ReitmeyerTwitter: @Niki_ReitmayerThank you to our special guests: Zack Grant, Debra's son and filmmaker. This is the official website for shakewithmefilm.comView his film \\"Shake with Me\\" for free on vimeo. Check out his other work at zackgrant dot com.Debra Magid, for sharing her Parkinson's story and her art. Check out her website www.DebraMagid.com .Jim Grant, Debra's husbandElizabeth Grant, Debra's DaughterOur presenting partner is Parkinson Canada http://www.parkinson.ca/The toll free hotline 1-800-565-3000Follow them on Twitter @ParkinsonCanadaFind the new Parkinson Clinical Guideline www.parkinsonclinicalguideline.caThanks also to our content and promotional partnersParkinson's IQ + You- A free, series of Parkinson's events from the Michael J. Fox FoundationSpotlight YOPD - The only Parkinson's organization dedicated to raising awareness for Young Onset Parkinson's disease and funds for the Cure Parkinson's Trust.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,000 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,348 | 0,010 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; les deux têtes enseignantes s’accordent sur ce qui est montré ici.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».