In Sickness and in Health. Love, Disability, and a Quest to Understand the Perils and Pleasures of Interabled Romance, by Ben Mattlin
Notice bibliographique
Résumé
When it comes to sexuality in the disabled, dismissal is apt to turn into outright repression" states Nancy Mairs in her essay Sex and the Gimpy Girl (Mairs 2009: 8-9).Indeed, western society generally prefers to infantilize disabled people and think of them as asexual beings.Nothing is farther from the truth, shows the disability activist Ben Mattlin in his new book.The author, known for his biography Miracle Boy Grows Up (2012), addresses interabled relationships in all their complexity and normalcy, fighting the idea that interabled couples are either tragic or noble.Mattlin interviewed fourteen interabled couples, including himself and his wife Mary Lois, about the "perils and pleasures" of their relationships.In his interviews Mattlin included a range of couples, varying in disability, race, age, gender and sexual orientation, striving for what he calls "gender fairness" (46).The diversity scale of the book includes, for example, the Asian -African American couple Wanda and Kevin (33), Alisha and Jared, facing Jared's PTSD after his deployment during the Iraq War (63), and the aging lesbian couple Christina and Janet (186).However, Alisha and Jared are the only couple facing a non-physical disability and there is quite a limited scale of physical disabilities represented, with most participants being para-or quadriplegic due to disease or accident.With the exception of one Canadian couple, all the interviewed couples are from the United States.Some of the couples started off as interabled, while some faced together the shift to disability for one of the partners.The most harrowing example in the book are probably Rachelle and Chris, who received a lot of media attention after Rachelle became paralyzed due to an accident during her bachelorette party, just days before their planned wedding.That postponed their wedding for two years but did not break them up: their relationship "proved to be strong" (54).The last interview includes recently widowed Colleen who reflects upon her thirty-five years of marriage to the disability rights advocate and quadriplegic Max (214).While Mattlin might have striven for an intersectional approach, the lower class is strikingly missing.He does, however, address the insufficiency of state and federal aid for
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Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,002 | 0,008 |
| Études des sciences et des technologies | 0,000 | 0,002 |
| Communication savante | 0,000 | 0,001 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».