The functionality of children with down syndrome: therapeutic history, parental adaptation to the deficiency and occupational performance of the parents
Notice bibliographique
Résumé
The arrival of a child with Down Syndrome (DS) inaugurates several daily changes in the family environment, social and psychological issues, causing frustrations and impacts on the parents, threatening their mental health and well-being. Therefore, the objective of this study is to analyze the functionality of the DS children in relation to mobility, self-care and social function, correlating the effects of the therapeutic history of children, parental adaptation to the disability and occupational performance of the parents. This research is a crosssectional, descriptive, quantitative study. Participants included 30 children aged 10 months to 7 years with DS. Data collection was performed in three municipalities in the interior of Rio Grande do Sul, in institutions responsible for monitoring these children in the public health system. Parents responded to the Pediatric Disability Assessment Inventory (PEDI), the Canadian Measurement of Occupational Performance (COPM), the Parental Adaptation Scale for Child Disability (PASCD), and an interview about the socioeconomic aspects and data on therapy that the child was submitted. The results of the research indicated that the children present better performance in the area of mobility and more delay in the area of selfcare. The socioeconomic and educational level of the parents influences the development of the child in his social functions and in the access of the families to the leisure. The mothers are the primary caregivers of children and families have greater difficulty in dealing with the diagnosis. In contrast, it is easy to see the capacities of the children, especially when the children have better levels of self-care and social function. The occupational problems of the parents are mainly in the area of productivity. The socioeconomic, educational level and the leisure activity of the parents influence the development of the child in his social functions. Families receiving social support have more independent children in self-care. The study concluded that it is necessary for each child and his / her family to have access to the different professions. In order to do so, it is incumbent upon each professional to evaluate and refer the children to the care that will be a priority and will meet the needs of the child and his / her family. The socioeconomic level of the parents and their leisure can be a crucial factor for the development of communication and child socialization, besides providing wellbeing and strengthening of the family bond. Professionals must be attentive to the aspects that permeate the diagnosis and the difficulties in the occupational performance of the parents, acting in a global way to meet the family needs. The support network is crucial for the well-being of families, being associated with higher levels of independence of the child in self-care.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,004 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,001 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,001 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».