The Quest for Health Information Resources by Young Adults with Disabilities: Building Theory
Notice bibliographique
Résumé
This constructivist grounded theory study aims to understand the experiences of health information-seeking processes of young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare. Its additional purpose is to build a theoretical framework comprised of the associated processes and sub-processes. Previous research has linked engaging in lifestyle health behaviours and health information-seeking. It has also found that, during the transition from pediatric to adult healthcare, young adults with lifelong physical disabilities engage in lifestyle health behaviours that put them at risk for secondary health conditions. The issue is exacerbated because, during this transition, these young adults often move from comprehensive, coordinated pediatric healthcare services to adult healthcare services that are less coordinated and inadequately address the multiple interrelated physical, psychological, and emotional problems that can accompany physical disability. Research has pointed to a paucity of relevant health information and resources available during this transition period. Furthermore, it has shown that little attention has been directed at health information-seeking by these young adults in transition. My study addresses the gap in knowledge about health information-seeking processes of young adults with lifelong physical disabilities as they transition from pediatric to adult healthcare. Accordingly, using Charmaz’s constructivist grounded theory methodology, I conducted ten in-depth, semi-structured interviews and three subsequent in-depth theoretical sampling interviews with young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare to learn more about their health information-seeking experiences and to develop a theoretical framework that incorporates health information-seeking processes and sub-processes. My iterative data analysis revealed four categories and their associated sub-categories related to the interplay concerning personhood (physical, cognitive, psychological aspects), emotion, and the broad context/environment that constitute the building blocks for a middle-range theory. The resulting theoretical framework embodies the core construct of the quest for health information resources by young adults with lifelong physical disabilities during their transition from pediatric to adult healthcare as well as these four categories and their sub-categories. Contributions of my findings to knowledge and theory, as well as their implications for clinical and public health practices, education for healthcare professionals, and policy emphasizing public health policy with a view to mitigating the health disparities of these young adults compared to their peers without disabilities, are discussed.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,008 | 0,008 |
| Méta-épidémiologie (sens strict) | 0,001 | 0,001 |
| Méta-épidémiologie (sens large) | 0,001 | 0,001 |
| Bibliométrie | 0,005 | 0,003 |
| Études des sciences et des technologies | 0,004 | 0,012 |
| Communication savante | 0,007 | 0,008 |
| Science ouverte | 0,001 | 0,006 |
| Intégrité de la recherche | 0,002 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,001 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».