Enriching social sharing for the dementia community: Technological opportunities
Notice bibliographique
Résumé
Dementia affects cognition, behaviour, and physical ability, posing serious challenges for maintaining active social interactions. Community-based activities are well-positioned to leverage the strengths and capacities of people with dementia and support social inclusion. A growing body of human-computer interaction (HCI) research is exploring technological opportunities for social activities at home and care facilities; however, comparatively less work has focused on community settings. This thesis helps fill this critical gap in HCI research on supporting community-based social sharing for people with dementia, both in-person and virtual. Through on-site fieldwork, virtual fieldwork, and methodological self-reflection, this thesis makes empirical contributions to dementia-related HCI research, as well as methodological contributions to HCI research in dementia and broader accessibility settings.Situating our on-site fieldwork in Tales & Travels, a storytelling and socializing program in the Montreal dementia community, we interviewed dyads of people living with early-middle stage dementia and their primary family caregivers, individual caregivers, and Tales & Travels facilitators (librarians and Alzheimer Society coordinators). Concurrently, we observed Tales & Travels sessions. Through thematic analysis on the interview transcripts and observation notes, this work identifies factors that aid in achieving positive outcomes and proposes new avenues for social technologies to diversify the range of social spaces in community settings.Building upon our on-site fieldwork, our virtual fieldwork investigates remote social activities explored by the same community in response to the impacts of the COVID-19 pandemic. We conducted follow-up interviews with a subset of caregivers and facilitators who participated in our previous study. Then, we reflected on our volunteering and facilitation experience at virtual Tales & Travels. Through thematic analysis on the interview transcripts and reflexive facilitation notes, this work deepens the understanding of virtual social sharing for the dementia community and proposes new avenues for reimagining community social spaces, affirming agency in people with dementia and caregivers, and diversifying HCI support across communities.Critically reflecting on our on-site fieldwork, we re-analyzed our interview transcripts and observation notes, as well as the process of study design, data collection, and data analysis. We examined how we succeeded and failed to capture the perspective of people with dementia while involving proxies (i.e., caregivers and facilitators). Through qualitative content analysis, this work contributes practical approaches to effective inclusion of proxy stakeholders in qualitative HCI work in sensitive settings. We further propose a set of guidelines recommending 1) extended engagement with the community and multifaceted research design in preliminary work, 2) open and flexible research settings, power dynamics management and intervention, and verbal and nonverbal communication in data collection, and 3) awareness of imbalanced voices and triangulation across sources in data analysis
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,002 | 0,000 |
| Communication savante | 0,000 | 0,000 |
| Science ouverte | 0,003 | 0,001 |
| Intégrité de la recherche | 0,000 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,000 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».