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Enregistrement W91282301

Mum's the word: donor anonymity in assisted reproduction.

2002· article· en· W91282301 sur OpenAlexaffabout
Josephine Johnston

Notice bibliographique

RevuePubMed · 2002
Typearticle
Langueen
DomaineMedicine
ThématiqueReproductive Health and Technologies
Établissements canadiensDalhousie University
Organismes subventionnairesnon disponible
Mots-clésOffspringSecrecySperm bankAnonymityPresumptionGynecologyFertilityMedicineInternet privacyPsychologyDemographyGeneticsPopulationBiologyPolitical scienceLawPregnancySociologyComputer science
DOInon disponible

Résumé

récupéré en direct d'OpenAlex

Traditionally, assisted human reproduction by gamete donor (1) has been a secretive, even anonymous, procedure. The very fact that an individual was conceived by assisted reproductive techniques was hidden from that individual, and strict donor anonymity ensured that both donor offspring (2) and their birth parents (3) would never know the identity of the donor(s). In fact, some fertility clinics would mix the sperm of more than one donor before inseminating a woman, so that no one would know which of the donors had a genetic link to the resultant child. (4) As a result of this secrecy, donor offspring have often assumed, or been led to believe, that they were the genetic child of both their birth parents. And even if they had been told of their donor origins, few have ever been able to gain access to any information, particularly identifying information, about their gamete donors. This history has led to an apparent presumption in favour of secrecy in assisted reproduction by donor (ARD). However, over the past 20 years this presumption has been challenged by a call for greater openness in ARD, with particular emphasis being placed on donor offspring having information, including identifying information, about their gamete donors. Canada has responded to this call in cl. 18 of Bill C-13. (5) Unfortunately, this response is inadequate. Although cl. 18 guarantees donor offspring access to health information about their donors, it stops short of complete openness by providing that identity information can only be passed on to donor offspring with the written consent of the donor. Allowing donors to withhold their identity from their donor offspring is particularly surprising given the Standing Committee on Health's recommendation that donors be required to consent to subsequent release of identifying information before they make a gamete donation. (6) A call for complete openness in ARD is not to ignore the important arguments that are often given in favour of secrecy. Rather, it is to say that because a choice must be made between secrecy and anonymity on the one hand and openness and honesty on the other, the presumption should be in favour of the latter policies. Similarly, where a choice must be made between the interests of birth parents and donors and the interests of donor offspring, the presumption should be in favour of donor offspring. Arguments for secrecy in ARD state that anonymity and secrecy are necessary to protect the birth parents, the family unit, the donor, and the donor offspring. For instance, it is said that society disapproves of ARD and that secrecy is necessary to protect both the birth parents and the donor offspring from perceived societal disapproval and stigma. (7) Another commonly cited justification is that secrecy protects the feelings of the infertile birth parent (usually the man) because, as one commentator noted, [o]ur society has unfortunately equated virility with fertility in men. (8) However, as fertility services are accessed by more and more people, it seems likely that the public will (if it has not already) become much more sympathetic towards the use of ARD and the cause of infertility in general, and so fears of public disapproval should be lessened. It is also often argued that openness in ARD would create a shortage or complete lack of donors (particularly sperm donors). (9) It is supposed that donors will be discouraged from donating if they know that their donor offspring could one day contact them. However, unwillingness among donors to being subsequently identified to, and perhaps contacted by, donor offspring may not be as prevalent as first assumed. A New Zealand study found that 68% of sperm donors surveyed were agreeable to their identity being made available to their donor child (10) and Australian studies have reported similar findings. In Sweden, the profile of sperm donors changed from young students to mature family men when a law was passed to give donor offspring access to identifying information about their gamete donors, and despite an initial drop, donor numbers did not suffer an overall decline. …

Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.

Comment cette classification a été obtenuedéplier

Prédiction distillée sur la base complète

Imitation des enseignants

Ni prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.

score de la tête « metaresearch » (Codex)0,001
score de la tête « metaresearch » (Gemma)0,002
Version: codex-gemma-dda1882f352aStatut de validation: machine_predicted_unvalidated
Catégories candidatesaucune
Catégories consensuellesaucune
DomaineSignal candidat: aucune · Signal consensuel: aucune
Devis d'étudeSignal candidat: Observationnel · Signal consensuel: aucune
GenreSignal candidat: Empirique · Signal consensuel: Empirique
Score de désaccord entre enseignants0,892
Score d'incertitude au seuil0,262

Scores Codex et Gemma par catégorie

CatégorieCodexGemma
Métarecherche0,0010,002
Méta-épidémiologie (sens strict)0,0000,000
Méta-épidémiologie (sens large)0,0000,000
Bibliométrie0,0000,001
Études des sciences et des technologies0,0000,000
Communication savante0,0000,000
Science ouverte0,0000,000
Intégrité de la recherche0,0000,000
Charge utile insuffisante (le modèle a refusé de juger)0,0000,000

Scores machine (provisoires)

Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.

Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.

Tête enseignante Opus0,076
Tête enseignante GPT0,264
Écart entre enseignants0,188 · la distance entre les deux têtes enseignantes sur ce seul travail
Statut de validationscore_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découle

Classification

machine, non validée

Prédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.

Les modèles n’ont appliqué aucune catégorie : rien dans la taxonomie ne correspondait à ce travail.
Devis d'étudeObservationnel
Domainenon disponible
GenreEmpirique

Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».

En bref

Citations8
Publié2002
Routes d'admission2
Résumé présentoui

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