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Record W1167359778 · doi:10.1353/ces.2015.0021

The Paradoxical Situation of Blood Donation in the Haitian-Quebec Community

2015· article· en· W1167359778 on OpenAlex
Johanne Charbonneau, Nathalie Tran

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

venuePublished in a venue whose home country is Canada.
aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueCanadian ethnic studies · 2015
Typearticle
Languageen
FieldBusiness, Management and Accounting
TopicBlood donation and transfusion practices
Canadian institutionsnot available
Fundersnot available
KeywordsCommissionBlood donorDonationMedicineWitnessEthnic groupPolitical scienceLawImmunology

Abstract

fetched live from OpenAlex

Blood donation involves precise regulations aiming to protect donors and recipients. At the beginning of the 1980’s, thousands of Canadians were infected with HIV and Hepatitis C. To prevent the contamination of blood products, health authorities asked Haitians, among other groups, to voluntarily refrain from giving blood. Witness testimonies at the Royal Commission of Inquiry on the Blood System in Canada (Krever Commission) show how profoundly affected Haitians were by these events. Today, we know that it is preferable to use phenotyped blood from the same community as the donor in the case of certain diseases. Increasing blood donation from the Black community is believed to be the best way to find donors who will be compatible with patients suffering from sickle-cell disease. Blood supply agencies such as Héma-Québec are seeking to convince Haitians to give blood in greater numbers. However, this task represents a great challenge, since, less than one generation ago, authorities asked that Haitians voluntarily abstain from donating blood. This paradoxical situation inspired the present analysis. Through the conceptual lens of a constructivist approach to ethnicity, this case study draws on a number of sources. By retracing the history of this community and the major events that have affected it over the decades, we are brought to a better understanding of the perceptions and realities of the Haitian community in Montreal with regard to blood donation. Our analyses show that even if Haitian-Quebec leaders are positively disposed towards blood donation, our results also expose that past events of the 1980’s have not been forgotten. Even if many are now willing to give blood to meet specific medical needs, for some, this could also contradict the usual universalist and altruistic message of blood donation. This case study highlights the importance of examining what happens at the relational boundary between minority and majority groups: after all, these events also contribute to redefining them. Le don de sang au Québec est encadré par des règles définies pour protéger les donneurs et ceux qui doivent subir une transfusion sanguine. Au début des années 1980, des milliers de Canadiens seront infectés par le VIH et l’Hépatite C. Pour prévenir la contamination des produits sanguins, les autorités sanitaires ont invité certains groupes, dont les Haïtiens, à s’abstenir volontairement de donner du sang. Les témoignages à la Commission d’enquête sur l’approvisionnement en sang au Canada (Commission Krever) ont montré à quel point les Haïtiens-Québécois en ont été affectés. Aujourd’hui, on sait qu’il est préférable d’utiliser le sang phénotypé qui provient de la même communauté que le donneur dans le cas de certaines maladies. Par exemple, l’augmentation de dons de sang de la communauté noire serait la meilleure façon de trouver des donneurs compatibles avec les patients atteints d’anémie falciforme. Convaincre les Haïtiens de donner du sang en plus grand nombre semble pourtant un véritable défi du fait qu’il y a à peine une génération, les autorités responsables ne voulaient pas de leur sang. C’est cette situation paradoxale qui a inspiré la présente analyse. À partir d’une approche constructiviste de l’ethnicité, cette étude de cas fait appel à de nombreuses sources afin de faire le point sur le rapport de la communauté haïtienne du Québec au don de sang, en reprenant le fil de l’histoire de cette communauté. Même si les leaders de la communauté haïtienne québécoise sont maintenant plutôt favorables au don de sang et qu’Héma-Québec a fait de nombreux efforts pour recruter des donneurs au sein de cette communauté, nos analyses montrent que la mémoire des événements difficiles vécus dans les années 1980 n’a pas complètement été effacée. De plus, même si plusieurs peuvent être motivés à donner du sang pour répondre aux besoins médicaux de la communauté, pour certains, ceci peut aussi aller à l’encontre du message universaliste du don de sang. Cette étude de cas montre l’importance de s’intéresser aux événements qui affectent ce qui se passe à la frontière des relations entre minorités et majorité et contribuent ainsi à les redéfinir.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.800
Threshold uncertainty score0.647

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0020.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.207
GPT teacher head0.353
Teacher spread0.146 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it