Populations and genetics : legal and socio-ethical perspectives
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
Acknowledgements -- In memoriam -- Prologue / Bartha Maria Knoppers -- Sect. 1. Of biobanks and databases -- UK DNA sample collections for research / Frances C. Rawle -- Estonian genome project: large scale health status description and DNA collection / Andres Rannamae -- Surveying the population biobankers / Genevieve Cardinal, Mylene Deschenes -- The Israeli DNA and cell line collection: a human diversity repository / David Gurwitz, Orit Kimchi, Batsheva Bonne-Tamir -- DNA Data Bank of Japan as an indispensable public database / Satoru Miyazaki and Yoshio Tateno - - A survey of the variability of DNA banks worldwide / Nicole Palmour -- An empirical survey on biobanking of human genetic material and data in six EU countries / Anne Cambon-Thomsen, I. Hirtzlin, N. Preaubert, C. Dubreuil, J. Duchier, B. Jansen, J. Simon, P. Lobato de Faria, A. Perez-Lezaun, B. Visser, G. Williams, J.C. Galloux and on behalf of the Eurogenbank Consortium -- Mutation databases and ethical considerations / Richard G.H. Colton, Ourania Horaitis -- Sect. 2. Of populations and communities -- Community engagement in genetic research: the "slow code" of research ethics? / Eric T. Juengst -- Competing perspectives on reasons for participation and non-participation in the North Cumbria Community genetics project / Erica Haimes, Michael Whong- Barr -- The engagement of consumers in genetics education: lessons learned / Michele A. Lloyd-Puryear, Penny Kyler, Gloria Weissman - - Racial profiling of DNA samples: will it affect scientific knowledge about human genetic variation? / Sandra Soo-Jin Lee and Barbara A. Koenig -- Problematizing the notion of "community" in research ethics / Fern Brunger -- On the intersection of privacy, consent, commerce and genetics research / Jon F. Merz -- A Presumed-consent model for regulating informed consent of genetic research involving DNA banking / Bernice Elger, Alexandre Mauron - - Ethical and legal issues in genetic biobanking / John A. Robertson -- Do the ethical duties of donor, and administrators, depend on whether the database is public or private? / Darryl Macer -- Public attitudes to participating in UK biobank : a DNA bank, lifestyle and morbidity database on 500,000 members of the UK public aged 45-69 / Darren Shickle, Rhydian Hapgood, Jane Carlisle, Phil Shackley; Ann Morgan and Chris McCabe -- Sect. 3. Of commerce, patents and benefit-sharing commercial biobanks and genetic research: banking without checks? / Mary Ruth Anderlik -- PXE International: harnessing intellectual property law for benefit- sharing / Patrick F. Terry -- Advances in science and progress of humanity: a global perspective on DNA sampling / Huanming Yang - - Benefit-sharing in the new genomic marketplace: expanding the ethical frame of reference / Ted Schrecker -- Harmonizing commercialisation and gene patent policy with other social goals / Lorraine Sheremeta, E. Richard Gold, and Timothy Caulfield -- Preliminary data on U.S. DNA based patents and plans for a survey of licensing practices / Robert Cook-Deegan; LeRoy Walters, Lori Pressman, Derrick Pau, Stephen McCormack, Janella Gatchauan, and Richard Burges -- Towards a universal definition of "benefit- sharing" / Maria Graciela De Ortuzar -- Do patents encourage or inhibit genomics as a global public good? / Halla Thorsteindottir, Abdallah S. Daar, Richard D. Smith, Peter A. Singer -- Patents and benefit-sharing as a challenge for corporate ethics / Chris Macdonald -- Pharmaceutical patents and benefit-sharing: evolution of drug accessibility in Brazil since the 1980's / M.B. Marques - - Reconciling social justice and economic opportunism: regulating the Newfoundland genome / Daryl Pullman, Andrew Latus -- Sect. 4. Of information and discrimination -- Attitudes to genetic research and uses of genetic information: support, concerns and genetic discrimination / Martin Richards -- Genetic information and insurance: some issues / Charles Black -- Discrimination / Moussa Charafeddine -- "Genetic discrimination" in an international context / Dorothy C. Wertz -- Additional ethical issues in genetic medicine perceived by the potential patients / Jackie Leach Scully, Christine Rippberger, Christoph Rehmann-Sutter -- Epilogue- statement of principles on the ethical conduct of human genetic research involving populations -- Why another statement from the RMGA? / Claude Laberge
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.003 |
| Scholarly communication | 0.000 | 0.001 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.002 | 0.002 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it