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Record W1720431007 · doi:10.15353/joci.v9i2.3172

With a little help from my friends: experiences of building a virtual community for children with cancer

2012· article· en· W1720431007 on OpenAlexvenueno aff
Paula Hicks, Jane Grimson, Owen Smith

Bibliographic record

VenueThe Journal of Community Informatics · 2012
Typearticle
Languageen
FieldMedicine
TopicChildhood Cancer Survivors' Quality of Life
Canadian institutionsnot available
Fundersnot available
KeywordsPsychosocialIsolation (microbiology)Social isolationPsychologySocial relationshipDevelopmental psychologySocial psychologyPsychotherapist

Abstract

fetched live from OpenAlex

Approximately 31% of children under 18 years of age have a chronic physical illness or condition. Challenges that impact a child’s ability to cope socially, emotionally, and or physically are often referred to as ‘psychosocial’ challenges and include isolation, change in family dynamics, and loss of social interaction with peers. Virtual communitiesprovide an efficient and effective means of supporting children who are vulnerable to psychosocial difficulties associated with chronic illnesses. This paper presents the experiences of developing one such communityentitled Solas for children with cancer. Solas aims to counteract the social isolation experienced by these children through the use of innovative technology giving them a sense of community and of belonging.(www.tcd.ie/solas)

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.004
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.028
Threshold uncertainty score0.636

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0040.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0000.000
Science and technology studies0.0010.000
Scholarly communication0.0000.001
Open science0.0010.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.043
GPT teacher head0.331
Teacher spread0.287 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2012
Admission routes1
Has abstractyes

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