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Record W2033308742 · doi:10.1177/1742395312451281

Emotions and chronic illness

2012· editorial· en· W2033308742 on OpenAlex
Sue Ziébland, Renata Kokanović

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueChronic Illness · 2012
Typeeditorial
Languageen
FieldHealth Professions
TopicMental Health and Patient Involvement
Canadian institutionsnot available
FundersMonash University
KeywordsQualitative researchSociology of health and illnessPsychologyMedicineHealth careSociologySocial sciencePolitical science

Abstract

fetched live from OpenAlex

The experience of chronic illness is often emotionally challenging. People respond to these challenges in very different ways yet their responses are inevitably shaped by their resources and social position, the wider environment and clinical, personal and societal reactions to their symptoms and diagnosis (or lack of diagnosis). This special issue of Chronic Illness features six papers, which all consider how people experiencing chronic illness talk about, and live with, emotions in different cultural contexts. We include papers from researchers in four countries: Japan, Israel, Germany and the UK. All of the researchers are members of the DIPEx International (DI) collaboration of qualitative health researchers and health professionals who have been inspired by the UK project, which produces www.healthtalkonline.org and www.youthhealthtalk.org. The first UK collections were published in 2001 and now include over 70 different health and illness sections. Similar studies have been conducted for sister websites in Australia, Japan, Korea, Spain and Germany. Projects are underway in the Netherlands, Israel and Canada and planned in many other countries. All of the DI projects use the same qualitative research methods: each collection involves a diverse, maximum variation sample of interviews, collected and analysed by experienced academic social scientists. Researchers travel throughout their country conducting digital video or audio (depending on the participant’s preference) recorded interviews with between 40 and 50 participants. People are interviewed at a place of their choice, usually their home; we avoid clinical settings. The interviews share a similar structure. First, the researcher invites the participant to tell the story of what has happened since, for example, they first suspected a problem. When the respondent indicates that this, the ‘narrative section’, is complete (in our experience this might take anything from 5min to 5 h) the researcher uses prompts and questions in a semi-structured section of the interview. Sometimes more than one interview is needed. The narrative section of the interview is intended to provide a space for the participant to tell their story and to identify the participants’ own priorities, rather than to elicit responses to a more narrowly focussed agenda. Cultural variations in responses to this kind of interview are likely but, while the research interview is arguably a western construction, storytelling is a feature of all human societies. Chronic Illness 8(3) 159–162 ! The Author(s) 2012 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav DOI: 10.1177/1742395312451281 chi.sagepub.com

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow), Science and technology studies, Research integrity, Insufficient payload (model declined to judge)
Consensus categoriesResearch integrity, Insufficient payload (model declined to judge)
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Editorial · Consensus signal: Editorial
Teacher disagreement score0.033
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.000
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0000.000
Science and technology studies0.0030.000
Scholarly communication0.0000.000
Open science0.0010.001
Research integrity0.0020.003
Insufficient payload (model declined to judge)0.0030.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.080
GPT teacher head0.404
Teacher spread0.324 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it