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Les facteurs sociaux liés au degré d'information de la population du Saguenay‐Lac‐Saint‐Jean à propos des maladies héréditaires et des services disponibles*

2004· article· en· W2037073622 on OpenAlexaffabout
Daniel Ducharme, Suzanne Veillette, Michel Perron, Julie Auclair, Marco Gaudreault

Bibliographic record

VenueCanadian Review of Sociology/Revue canadienne de sociologie · 2004
Typearticle
Languageen
FieldBiochemistry, Genetics and Molecular Biology
TopicGenomics and Rare Diseases
Canadian institutionsCégep de JonquièreBureau de Coopération Interuniversitaire
Fundersnot available
KeywordsSAINTPopulationEthnologyHumanitiesDemographyPolitical scienceGeographySociologyPhilosophyHistory

Abstract

fetched live from OpenAlex

The past few years have seen significant advances in medical genetics. These advances have in turn given rise to several important clinical applications that have targeted populations with specific historical and demogenetic characteristics. One such population lives in the Saguenay‐Lac‐Saint‐Jean region of Quebec. One might think that this population is reasonably well informed of the situation. But their knowledge of population‐specific genetic pathologies and of the services available to them happens to vary considerably from one social group to another. This article presents the results of a quantitative study aimed at determining the factors that contribute to the acquisition of such knowledge in this population. Depuis quelques années, nous assistons à d'importantes avancées en génétique médicale. Celles‐ci induisent un développement sans précèdent de nouvelles applications cliniques qui interpellent certaines populations dont les caractéristiques historiques et démogénétiques font qu'elles sont davantage concernées. C'est le cas, notamment de la population du Saguenay‐Lac‐Saint‐Jean (Québec). On pourrait penser que cette population s'avère, dans l'ensemble, largement sensibilisée mais il appert que le niveau d'information sur les génopathies régionales et les services offerts varie considérablement d'un groupe social à l'autre. Le présent article livre les résultats d'une enquête quantitative visant à connaître les facteurs qui favorisent l'acquisition de telles connaissances dans cette population.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.007
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.250
Threshold uncertainty score0.503

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0020.007
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0020.003
Science and technology studies0.0050.003
Scholarly communication0.0030.001
Open science0.0010.001
Research integrity0.0010.001
Insufficient payload (model declined to judge)0.0110.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.023
GPT teacher head0.283
Teacher spread0.260 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2004
Admission routes2
Has abstractyes

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