Are Individuals With Disabilities and Their Families “Resilient”? Deconstructing and Recasting a Well-Intended Concept
Bibliographic record
Abstract
This article contributes to existing scholarship related to resilience in families with members with disabilities by first using a disability studies orientation to "unbound" existing definitions of resilience, then by providing empirical illustration of this unbounding. Using family as our unit of analysis, we present data from 3 families who navigate successes and challenges related to disability. Three themes of honoring relationships, family member expertise, and standing in one's power emerged. We suggest that more nuanced understandings of resilience, which account for fluid, localized perspectives and encompass contradictory meanings and processes (e.g., stress and joy), have implications for policy and practice.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.006 | 0.013 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.003 | 0.002 |
| Science and technology studies | 0.009 | 0.043 |
| Scholarly communication | 0.008 | 0.013 |
| Open science | 0.001 | 0.010 |
| Research integrity | 0.002 | 0.004 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".