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Siblings' Experiences With Childhood Cancer

2006· article· en· W2082159734 on OpenAlex
Roberta L. Woodgate

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueCancer Nursing · 2006
Typearticle
Languageen
FieldMedicine
TopicChildhood Cancer Survivors' Quality of Life
Canadian institutionsUniversity of Manitoba
Fundersnot available
KeywordsChildhood cancerMedicinePerspective (graphical)SadnessQualitative researchDevelopmental psychologyCancerFocus groupPsychologyClinical psychologyAnger

Abstract

fetched live from OpenAlex

Childhood cancer and its treatment result in many challenges that impact the entire family. For siblings of children with cancer, the challenges can be particularly stressful as they often undergo tremendous change in their lives. Although there is a sound and growing body of knowledge on how siblings experience childhood cancer, there is still much to be learned. Part of a larger qualitative study aimed at detailing childhood cancer experience and its symptom trajectory from the perspective of parents, ill children, and siblings, this study aims to describe findings specific to 30 siblings who participated in the study. Siblings took part in individual interviews, focus group interviews, and participant observation. The constant comparative method of data analysis yielded the theoretical category of "ways of being in the world," which referred to the different ways that cancer impacted on the lives of children with cancer and their families. For the siblings, cancer was experienced as a different way of being within their family and involved siblings undergoing a loss of a family way of life and a loss of self within the family. Three themes related to a different way of being in the family were identified: committing to keeping my family together, being present, and enduring sadness. The findings reinforce that more needs to be done in helping healthy siblings through childhood cancer.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.303
Threshold uncertainty score0.966

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.020
GPT teacher head0.335
Teacher spread0.314 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it