‘My mom was my left arm’: The lived experience of ableism for girls with Spina Bifida
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
In many cultures, people deemed different, deficient or of lesser value are socially marginalized, disempowered, devalued and face innumerable barriers to health and quality of life. Persons deemed disabled are one such group. Through oppression, discrimination, and constant degradation, marginalized groups are denied the basic human right of dignity. For five girls with Spina Bifida, the experience of societal ableism, i.e. the belief that being able bodied is normal, eroded their sense of self worth, impinged upon their human rights, and isolated them in their own degradation - until they came together and spoke. My Mom Was My Left Arm illuminates the impact of ableism on the health and well-being of girls living with Spina Bifida. Several focus groups with five girls concerning their lives, anger and health yielded compelling reasons for today's contemporary nurse to explicitly practice from a social justice framework. In being deemed other, less than and viewed as their disability, the young women interviewed believed they had never reached their actual life potential. The relationship between health and ableist discrimination as lived by young women with Spina Bifida will be explored. The paper will close with nursing's ethical imperative to advocate for social justice, equity, fairness and dignity.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.001 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it