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EULAR Sjögren's syndrome disease activity index (ESSDAI): a user guide

2015· review· en· 390 citations· W2111955466 on OpenAlex· 10.1136/rmdopen-2014-000022

Why is this work in the frame?

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

Canadian funderA Canadian agency funded it. The work may carry no Canadian affiliation at all.

No Canadian affiliation. An affiliation-only frame — the usual design — would never have seen this work. It is one of the works that make the case for inverting the frame.

Machine scores (provisional)

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Opus teacher head0.109
GPT teacher head0.412
Teacher spread
0.304 · how far apart the two teachers sit on this one work
Validation status
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Abstract

The EULAR Sjögren's syndrome (SS) disease activity index (ESSDAI) is a systemic disease activity index that was designed to measure disease activity in patients with primary SS. With the growing use of the ESSDAI, some domains appear to be more challenging to rate than others. The ESSDAI is now in use as a gold standard to measure disease activity in clinical studies, and as an outcome measure, even a primary outcome measure, in current randomised clinical trials. Therefore, ensuring an accurate and reproducible rating of each domain, by providing a more detailed definition of each domain, has emerged as an urgent need. The purpose of the present article is to provide a user guide for the ESSDAI. This guide provides definitions and precisions on the rating of each domain. It also includes some minor improvement of the score to integrate advance in knowledge of disease manifestations. This user guide may help clinicians to use the ESSDAI, and increase the reliability of rating and consequently of the ability to detect true changes over time. This better appraisal of ESSDAI items, along with the recent definition of disease activity levels and minimal clinically important change, will improve the assessment of patients with primary SS and facilitate the demonstration of effectiveness of treatment for patients with primary SS.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

The record

Venue
RMD Open
Topic
Salivary Gland Disorders and Functions
Field
Medicine
Canadian institutions
Funders
Università degli Studi di PerugiaHaukeland UniversitetssjukehusNational and Kapodistrian University of AthensUniversità di PisaUniversity of TsukubaUniversità degli Studi di PaviaUniversidade Federal do Espírito SantoUniversity of TorontoMalmö HögskolaFundació Institut de Recerca Hospital Universitari Vall d’HebronLunds UniversitetNational Institute of Arthritis and Musculoskeletal and Skin DiseasesSapienza Università di RomaOklahoma Medical Research FoundationUniversity of Pennsylvania
Keywords
MedicineDiseaseGold standard (test)Index (typography)Physical therapyInternal medicineComputer scienceWorld Wide Web
Has abstract in OpenAlex
yes