“It's Really a Roller Coaster”: Experience of Parenting Children with Developmental Disabilities
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
The aim of this research was to explore the experience of parenting a child diagnosed with a developmental disability. The in-depth interviews were semistructured and open-ended, covering topics such as positive and negative experiences and time demand in raising a child with a developmental disability, their effects on family relationship and on physical and mental health of the parents, and the strategies for managing the negative experiences. Overall, the participants indicated that parenting a child with a developmental disability is both challenging and rewarding, depending on the circumstances facing parents in a particular day. The findings are interpreted in five thematic structures: (1) negotiating joys and sorrows, (2) physical and mental exhaustion, (3) negotiating with family matters, (4) social stigma, and (5) hope in the midst of despair, each of which comprised several subthemes/categories. The discussion includes implications of the findings.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.001 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.013 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it