Symptoms and fear in heart failure patients approaching end of life: a mixed methods study
Why is this work in the frame?
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
No Canadian affiliation. An affiliation-only frame — the usual design — would never have seen this work. It is one of the works that make the case for inverting the frame.
The three-model screen
all 1,000 screened works →All three models called this out of scope.
Mixed-methods study of fear and symptoms in heart failure patients; the remark on the value of mixed methods is incidental to a clinical object.
This mixed-methods study examines patient experiences in heart failure rather than research practice.
Clinical mixed-methods study of fear and symptoms in end-stage heart failure patients.
Abstract
AIMS AND OBJECTIVES: The purpose of this study was to consider how fear and symptom experience are perceived in patients with heart failure at the end of life. BACKGROUND: Heart failure is a burdensome condition and mortality rates are high globally. There is substantive literature describing suffering and unmet needs but description of the experience of fear and the relationship with symptom burden is limited. DESIGN: A convergent mixed methods design was used. METHODS: Data from the McGill Quality of Life Questionnaire (n = 55) were compared to data from in-depth interviews (n = 5). RESULTS: Patients denied fear when asked directly, but frequently referred to moments of being afraid when they were experiencing symptoms. In addition, patients reported few troublesome symptoms on the survey, but mentioned many more symptoms during interviews. CONCLUSIONS: These data not only identify the relationship between psychological issues and symptom experience but also elucidate the benefit of a mixed method approach in describing such experiences from the perspective of the patient. Future research should examine relationships between and among symptom experience, fear and other psychological constructs across the illness trajectory. RELEVANCE TO CLINICAL PRACTICE: Conversations about the interaction of symptom burden and fear can lead to both a more robust assessment of symptoms and lead to patient centred interventions.
Stored with the screening record, where it is evidence for the labels above.
The record
- Venue
- Journal of Clinical Nursing
- Topic
- Heart Failure Treatment and Management
- Field
- Medicine
- Canadian institutions
- —
- Funders
- National Center for Advancing Translational SciencesNational Institute of Nursing ResearchMcGill UniversityNational Institutes of HealthHeart Failure Society of AmericaJohns Hopkins UniversityAmerican Nurses Foundation
- Keywords
- Quality of life (healthcare)Psychological interventionPerspective (graphical)MedicineRelevance (law)PsychologyClinical psychologyPsychiatryNursing
- Has abstract in OpenAlex
- yes