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Experience of an Adolescent Living With and Dying of Cancer

2011· article· en· W2147559816 on OpenAlexaffabout
Shauna Flavelle

Bibliographic record

VenueArchives of Pediatrics and Adolescent Medicine · 2011
Typearticle
Languageen
FieldMedicine
TopicChildhood Cancer Survivors' Quality of Life
Canadian institutionsIzaak Walton Killam Health Centre
Fundersnot available
KeywordsNova scotiaSpiritualityQualitative researchPalliative carePerspective (graphical)Interpretative phenomenological analysisMedicineChildhood cancerPsychologyQualitative analysisCancerPsychiatryPsychotherapistAlternative medicineNursingHistorySociologySocial scienceArt

Abstract

fetched live from OpenAlex

OBJECTIVE: To provide a unified description of an adolescent's experience of living with and dying of cancer. DESIGN: Qualitative analysis using phenomenological methods. SETTING: Izaak Walton Killam Health Centre, Halifax, Nova Scotia, Canada. PATIENT: A 15-year-old boy who was diagnosed as having osteosarcoma in 2003 and died of his disease 1 year later. INTERVENTION: Analysis of his 90-page journal that spanned 3 months just before his death. MAIN OUTCOME MEASURES: Identification and clustering of key themes to capture the essence of his experience. RESULTS: Five main themes that surfaced during analysis of the journal were adolescent development, escape from illness, changing relationships, symptoms, and spirituality. CONCLUSION: A single case study can provide valuable information in a field such as pediatric palliative care in which the patient's perspective may be difficult to access or ascertain.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.006
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.004
Threshold uncertainty score0.012

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0020.006
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0030.004
Scholarly communication0.0020.002
Open science0.0010.002
Research integrity0.0010.002
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.036
GPT teacher head0.305
Teacher spread0.269 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations27
Published2011
Admission routes2
Has abstractyes

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Same venueArchives of Pediatrics and Adolescent MedicineSame topicChildhood Cancer Survivors' Quality of LifeFrench-language works237,207