WAITING FOR A LIVER TRANSPLANT: AN EXPLORATION OF THE LIVED EXPERIENCE OF PATIENTS AND CAREGIVERS IN ATLANTIC CANADA
Bibliographic record
Abstract
Liver transplantation is the only life-sustaining treatment available for patients with end stage liver disease, however the demand for these organs far exceeds availability. Many psychological, emotional and physical symptoms accompany the wait for a liver transplant. An interpretive phenomenological design was used to explore how patients and caregivers experience waiting for a liver transplant. Seven participants were recruited to take part in semi-structured interviews. Findings revealed that patients and caregivers have an overarching experience of the conundrum of hope. Four core themes were uncovered: Waiting for the Phone Call, Negotiating the Disruption: Redefining Self, Riding the Emotional Roller Coaster of Waiting and The Light at the End of the Tunnel. Findings of this study identify the need for additional psychological supports to be offered to patients and families, enhanced communication between patients and health care providers and the creation of support communities for both patients and caregivers.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.003 | 0.008 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.001 | 0.003 |
| Science and technology studies | 0.030 | 0.009 |
| Scholarly communication | 0.008 | 0.002 |
| Open science | 0.002 | 0.008 |
| Research integrity | 0.002 | 0.005 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".