The Beanstalk Program: Developmentally Focused Care for the Young Transplant Child During Prolonged Hospitalization
Bibliographic record
Abstract
Purpose: Solid organ transplantation (SOT) is standard therapy for patients with end stage disease; however young children with prolonged hospitalization due to organ failure and SOT are at increased risk for developmental delay. The Beanstalk Program (BP) was established on the multi-organ transplant ward at an acute care, paediatric hospital in Toronto, Canada. Using an inter-professional, family-centred model, the program strives to enhance the developmental experiences of chronically ill, long-term hospitalized (>3 weeks) children (birth to 3 years). It provides an optimal environment, ongoing education and facilitates positive experiences to enhance early childhood development. This study investigates parental experiences and perception of the developmentally focused care during their child's hospitalization. Methods: Following IRB approval, parents whose children were part of the BP between 2003-2008 were recruited to participate in a mixed method study. Participants completed the Measures of the Process of Care (MPOC-20), with additional questions regarding the BP, and were invited to participate in a follow-up qualitative semi-structured interview. MPOC-20 scores are reported descriptively. Interviews were transcribed and analysed until saturation of themes was achieved. Results: The MPOC-20 was completed by 20 parents (of children hospitalized between 2-15 months; diagnosed with liver failure, intestinal failure, renal failure or pre/post liver transplant, liver/small bowel transplant). MPOC-20 scores rate the extent of healthcare provider's behaviour as perceived by the family ranging from 1 (worst) to 7 (best). Highest scores included Respectful and Supportive Care (6.33) and Beanstalk Programming (6.34); lowest scores were for Providing General Information (5.65). Interview data generated several key themes depicting interplay between the child, the parent and the provision of developmentally focused care. Overarching themes include: a) Parents describe striving for positive and normal developmental experiences for their child within the hospital environment with the importance of routines, creating safe spaces for their child and accommodating the family/child's needs; b) Parents value the focus on child development in the midst of their child's complex medical issues c) Receiving appropriate developmental information and skills helped parents shift from being overwhelmed with a medically ill child to being confident and empowered to care for their child and transition home Conclusion: Parental perceptions of experiences during prolonged hospitalizations attest to the importance of developmentally focused care for young SOT patients. The BP has positively impacted the culture of care for this population and can inform future development and expansion of similar programs for young infants and children.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.003 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.002 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".