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Record W2320931573 · doi:10.1300/j010v39n01_08

Parents as Advocates

2005· article· en· W2320931573 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueSocial Work in Health Care · 2005
Typearticle
Languageen
FieldMedicine
TopicChildhood Cancer Survivors' Quality of Life
Canadian institutionsWilfrid Laurier University
Fundersnot available
KeywordsCarelessnessNarrativePsychologyDaughterContext (archaeology)PerceptionSocial psychologyDevelopmental psychologyMedicinePsychiatryHistoryLawPolitical science

Abstract

fetched live from OpenAlex

Twenty-nine parents of children who had been diagnosed with cancer were interviewed through long and relatively unstructured interviews conducted via telephone by a mother whose own daughter once had cancer. Parents were asked to tell the story of their experiences during the time that they were 'going through' cancer. Parents usually began their narrative in the months, weeks, or days prior to the diagnosis. They spoke of various parts of the story. In this paper, the focus is on one topic that parents talked about a lot. We call this 'problems with the system' or 'surplus suffering.' Here parents reported on their perceptions of mistakes, and delays in diagnosis, errors, carelessness, and unkindness during treatment. They talked of how they felt they had to be on constant guard, and at times, to intervene in their child's care. This paper provides a picture of parental expectations and their violation during the treatment of their children for cancer. It begins to demonstrate how parents see themselves as advocates for their children in a context of fragile power relations.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.341
Threshold uncertainty score0.626

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.030
GPT teacher head0.387
Teacher spread0.357 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it