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Record W2321056056 · doi:10.2190/il.22.2.d

Life Interrupted: The Impact of Complex Chronic Disease from the Perspective of Hospitalized Patients

2014· article· en· W2321056056 on OpenAlexaff
Kerry Kuluski, Cécile M. Bensimon, Celeste Alvaro, Renée Lyons, Alexis K. Schaink, Roy Tobias

Bibliographic record

VenueIllness Crisis & Loss · 2014
Typearticle
Languageen
FieldMedicine
TopicChronic Disease Management Strategies
Canadian institutionsToronto Metropolitan UniversityBridgepoint Active HealthcareUniversity of Toronto
Fundersnot available
KeywordsAutonomyPerspective (graphical)DiseaseMental healthChronic diseaseMedicineMeaning (existential)Social supportPsychologyGerontologyMental illnessHealth carePsychiatryFamily medicineSocial psychology

Abstract

fetched live from OpenAlex

A growing number of individuals require health services to manage multiple chronic conditions (i.e., complex chronic disease), yet little is known about their experience. The purpose of this study was to investigate the impact of complex chronic disease on the lives of individuals receiving hospital care. Ninety-five participants were interviewed between February and June 2011 and shared their views on how illness impacted their lives. Interviews were transcribed and thematically coded using computer assisted data analysis software. Participants' views were organized into six themes: loss of: autonomy; meaningful activities; structures of meaning; social fabric; mental health; and finances. Most participants articulated multiple losses, particularly those with high illness severity. This study sheds light on the experience of loss as a consequence of disease. To adequately support the needs of these individuals, a model of care must address the interface between mental, social, and physical health.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.187
Threshold uncertainty score0.946

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.024
GPT teacher head0.335
Teacher spread0.311 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations14
Published2014
Admission routes1
Has abstractyes

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