Holding on to Normalcy and Overshadowed Needs: Family Caregiving at End of Life
Bibliographic record
Abstract
BACKGROUND: Caregivers in end-of-life care are at risk for health deterioration and decreased quality of life because of the many stressing factors involved in the caregiving role. PURPOSE: The purpose of this analysis is to come to understand the nature of occupation as experienced by family caregivers of dying patients at a residential hospice. METHODS: Data from hospice residents, their family members, and the hospice staff was collected over a period of six months via participant observation, interviews, and document review. FINDINGS: The themes "holding on to normalcy" and "overshadowed needs of caregivers" describe the complex and uncertain nature of family caregivers' occupation. IMPLICATIONS: Occupations of family caregivers reflected experiences of doing, being, belonging, and becoming. By looking through the lens of the caregiver, the findings of this study will help occupational therapists address the unique needs of the caregiver in end-of-life care.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.001 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".