MétaCan
Menu
Back to cohort
Record W2596685881

Makayla's Decision: The Exercise of Indigenous Rights and the Primacy of Allopathic Medicine in Canada

2015· article· en· W2596685881 on OpenAlexvenueaboutno aff
Maura Hanrahan, Bernard Wills

Bibliographic record

VenueCanadian journal of native studies · 2015
Typearticle
Languageen
FieldSocial Sciences
TopicIndigenous Health, Education, and Rights
Canadian institutionsnot available
Fundersnot available
KeywordsIndigenousMedicineHistoryFamily medicinePediatricsLawPolitical science
DOInot available

Abstract

fetched live from OpenAlex

Introduction: Makayla Sault and JJIn the middle of January 2015, eleven-year-old Makayla Sault of Ontario's New Credit First Nation died of cancer. A year earlier Makayla had been diagnosed with a rare version of acute lymphoblastic leukemia called positive Philadelphia chromosome. For eleven weeks, Makayla underwent chemotherapy, the severe side-effects of which forced into intensive care. Makayla's mother Sonya Sault described the experience to the Canadian Broadcasting Corporation: It's a mother's worst nightmare. .I remember I just watch and listening to pray, 'Oh God. Come and get me, come and take from here.' She said, 'Mom, [it's] the leukemia but it is the chemo that is going to kill me (Walker, 2014).Eventually Makayla and parents decided to end the chemotherapy. Makayla herself wrote a letter outlining wishes and there were many mediation meetings between hospital staff and Indigenous cultural experts (Garlow, 2015). Yet the family was told by physicians at McMaster Children's Hospital that Makayla would have 100 per cent relapse and she die if discontinued (Walker, 2014). The physicians added that traditional medicine has zero per cent success, according to Sonya Sault (Walker, 2014). Sault told the New Credit Band Council that [Dr. Barr] said to us '...anyone who says that traditional medicine works should be thrown in jail' (Two Row Times, 2014). The hospital then referred the case to the Children's Aid Society, sparking fears that Makayla could be apprehended and removed from family and community.Makayla was deemed capable by the Children's Aid Society and by the courts of making decisions about health; therefore, decision to end chemotherapy stood. But for six weeks, the Sault family lived with the knowledge that they could lose custody of their sick daughter and that she might be forced to receive further chemotherapy against will and the will of parents. The New Credit First Nation chief and council fully supported the Sault family, and hundreds of members of the community formed the Makayla Defence Force, which aimed to protect Makayla should the Children's Aid Society attempt to take her. Said Makayla's mother, . .if that's what it comes down to, they need to be physical. We're going to do what it takes to make sure our daughter is protected (Walker, 2014).On May 21, 2015 it was announced that Makayla remain at home with family (Garlow, 2014). According to the executive director of the Children's Aid Society, Makayla was not in need of protection and we felt their choice to use traditional medicines was within their right (Walker, 2014). As the authorities' decision was announced, a family friend said, All of the grandmas were crying. Sonya was crying and it was just a big weight lifted off shoulders. She's been liv- ing in fear for the last six weeks, thinking that kids were going to be taken from her (Walker, 2014).Makayla's family gave Indigenous treatments -- Ongwehowe Onongwatri: yo - administered by a healer at the Six Nations reserve. They also took Makayla to the Hippocrates Health Institute in Florida, which offers nutrition and other programs aimed at helping people become disease-free (http://hippocratesinst.org/the-institute/about-hippocrates).1 After suffering a stroke early in 2015, Makayla died.Almost concurrently, JJ, another First Nations eleven year old, was the subject of a court case when McMaster Children's Hospital, the same hospital that treated Makyala, went to court seeking an order to continue chemotherapy treatment. McMaster physicians claimed that further chemotherapy give the girl, J.J., a 90% chance of survival.2 JJ's mother, an Indigenous healer from the Six Nations of the Grand River reserve, wanted to replace chemotherapy with Indigenous medicine. The Ontario Court of Justice refused the hospital's request, deferring to the girl's mother as per the family's Aboriginal rights under Section 35 of the Constitution Act (1982). …

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.003
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.273
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0030.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0010.002
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.034
GPT teacher head0.323
Teacher spread0.289 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2015
Admission routes2
Has abstractyes

Explore more

Same venueCanadian journal of native studiesSame topicIndigenous Health, Education, and RightsFrench-language works237,207