Bridging the Distance: Communicating to Distance Family Members during Palliative Care
Bibliographic record
Abstract
Communication within families can be a critical concern for a person diagnosed with a life-limiting illness. \nAs the patient is faced with decisions about their care, family members are also faced with decisions about their supporting role during this emotional time. Access to information—or lack of access to information—can be a key factor in the ability to feel connected to a loved one, as they experience decline at end-of-life. \n \nAdded to the complexity of connection and decision- making at end-of-life is an increasingly aging demographic; a changing family structure, no longer defined by traditional roles and geographic proximity; and a Canadian society that is unable, or unwilling, to discuss death and dying. \n \nA design research approach, supported by systems thinking and future shifts, is used to better understand the communication needs of family members at a distance during palliative care. The project also explores a complex problem, rooted in what it means to be human: to live life, and to accept the death of our loved ones and ourselves.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.009 | 0.023 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.012 | 0.005 |
| Scholarly communication | 0.007 | 0.008 |
| Open science | 0.002 | 0.009 |
| Research integrity | 0.002 | 0.002 |
| Insufficient payload (model declined to judge) | 0.011 | 0.002 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".