289 Developmentof a booklet providing information to schools and parents on how to support apupil with JIA
Bibliographic record
Abstract
Background: Since the launch of our JIA service in 2013, we have gathered data from families of children with JIA who attended family events and we talked to children, young people and adults with JIA. These discussions advised us of the need for practical information about how to support young people with JIA in an educational setting. Therefore, we decided to develop a booklet on managing JIA in school to accompany our JIA explained booklet. Methods: In early autumn 2016, JIA service Manager contacted 50 schools across the country to ascertain their knowledge of JIA and how they currently receive and share information on JIA (and other long-term conditions) with staff and students. How they would like to receive information on JIA? What kind of content? Health professionals (HCPs) would be the primary distributors of these booklets, their design should be in a format that was easy to store and distribute. We studied material provided to schools on other long-term conditions. Finally, NRAS hosted a focus group comprising HCPs, parents, young people and adults with JIA. There was honest discussion on content, look, feel and purpose of the booklet, taking account of personal experiences. Results: Work began on writing the content for the identified subject headings comprising 11 key topics including medication and treatment, helping students to manage their condition and what does a bad day look like? NRAS submitted this content to headteachers, HCPs and parents for peer and reader review. Conclusion: Managing JIA in School was published at the end of 2016, over 15,000 copies have been sent throughout the UK. Whilst the content has been based on the English schools’ system, it is being used widely through the devolved nations as well. Managing JIA in School has also been requested from HCPs and parents from countries outside the UK, including the USA, Tehran, Australia, Eire and India. This unique and practical publication has helped parents and young people have a more positive experience at school. Managing JIA in School has enabled school staff to better understand the condition and put the support in place to facilitate a better outcome for the student. JIA-at-NRAS, part of the National Rheumatoid Arthritis Society, is an active member of the Health Conditions in Schools Alliance (HCSA). This Alliance comprises over 30 organisations, including charities, healthcare professionals and trade unions, collaborative work ensures children with long-term conditions get the care they need in school. Managing JIA in School promotes their work and provides signposting to the HCSA and other organisations. Disclosures: The author has declared no conflicts of interest.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.003 | 0.008 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.002 | 0.002 |
| Open science | 0.001 | 0.002 |
| Research integrity | 0.002 | 0.002 |
| Insufficient payload (model declined to judge) | 0.114 | 0.027 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".