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In silico validation of the Autoinflammatory Disease Damage Index

2018· article· en· W2885442772 on OpenAlexaff
Nienke M. ter Haar, Amber Laetitia Justine van Delft, Kim V. Annink, Henk F. van Stel, Sulaiman M. Al‐Mayouf, Gayane Amaryan, Jordi Antón, Karyl S. Barron, Susanne M. Benseler, Paul Brogan, Luca Cantarini, Marco Cattalini, Alexis‐Virgil Cochino, Fabrizio De Benedetti, Fatma Dedeoğlu, Adriana A. de Jesus, Erkan Demirkaya, Pavla Doležalová, Karen Durrant, Giovanna Fabio, Romina Gallizzi, Raphaela Goldbach‐Mansky, É. Hachulla, Véronique Hentgen, Troels Herlin, Michaël Hofer, Hal M. Hoffman, Antonella Insalaco, Annette Jansson, Tilmann Kallinich, Isabelle Koné‐Paut, А. Л. Козлова, Jasmin Kuemmerle‐Deschner, Helen J. Lachmann, Ronald M. Laxer, Alberto Martini, Susan Searles Nielsen, И. П. Никишина, Amanda K. Ombrello, Seza Özen, Efimia Papadopoulou‐Alataki, Pierre Quartier, Donato Rigante, Ricardo Russo, Anna Simon, Maria Trachana, Yosef Uziel, Angelo Ravelli, Grant S. Schulert, Marco Gattorno, Joost Frenkel

Bibliographic record

VenueAnnals of the Rheumatic Diseases · 2018
Typearticle
Languageen
FieldBiochemistry, Genetics and Molecular Biology
TopicInflammasome and immune disorders
Canadian institutionsHospital for Sick ChildrenUniversity of TorontoWestern UniversityAlberta Children's Hospital
FundersExecutive Agency for Health and ConsumersNovartis PharmaNational Institutes of HealthUniversitair Medisch Centrum UtrechtRosetrees Trust
KeywordsMedicineIn silicoIndex (typography)DiseaseComputational biologyPathologyWorld Wide WebGeneticsBiology

Abstract

fetched live from OpenAlex

INTRODUCTION: Autoinflammatory diseases can cause irreversible tissue damage due to systemic inflammation. Recently, the Autoinflammatory Disease Damage Index (ADDI) was developed. The ADDI is the first instrument to quantify damage in familial Mediterranean fever, cryopyrin-associated periodic syndromes, mevalonate kinase deficiency and tumour necrosis factor receptor-associated periodic syndrome. The aim of this study was to validate this tool for its intended use in a clinical/research setting. METHODS: The ADDI was scored on paper clinical cases by at least three physicians per case, independently of each other. Face and content validity were assessed by requesting comments on the ADDI. Reliability was tested by calculating the intraclass correlation coefficient (ICC) using an 'observer-nested-within-subject' design. Construct validity was determined by correlating the ADDI score to the Physician Global Assessment (PGA) of damage and disease activity. Redundancy of individual items was determined with Cronbach's alpha. RESULTS: The ADDI was validated on a total of 110 paper clinical cases by 37 experts in autoinflammatory diseases. This yielded an ICC of 0.84 (95% CI 0.78 to 0.89). The ADDI score correlated strongly with PGA-damage (r=0.92, 95% CI 0.88 to 0.95) and was not strongly influenced by disease activity (r=0.395, 95% CI 0.21 to 0.55). After comments from disease experts, some item definitions were refined. The interitem correlation in all different categories was lower than 0.7, indicating that there was no redundancy between individual damage items. CONCLUSION: The ADDI is a reliable and valid instrument to quantify damage in individual patients and can be used to compare disease outcomes in clinical studies.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.130
Threshold uncertainty score0.259

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.012
GPT teacher head0.267
Teacher spread0.256 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations38
Published2018
Admission routes1
Has abstractyes

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