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Record W2902174662 · doi:10.1136/rmdopen-2018-000793

Systemic lupus erythematosus: state of the art on clinical practice guidelines

2018· review· en· W2902174662 on OpenAlex
Farah Tamirou, Laurent Arnaud, Rosaria Talarico, Carlo Alberto Scirè, Tobias Alexander, Zahir Amoura, Tadej Avčin, Alessandra Bortoluzzi, Ricard Cervera, Fabrizio Conti, Alain Cornet, H. Devilliers, Andrea Doria, Micol Frassi, Micaela Fredi, Marcello Govoni, Frédéric Houssiau, Ana Lladó, Carla Macieira, Thierry Martin, Laura Massaro, Maria Francisca Moraes‐Fontes, Cristina Pamfil, Sabrina Paolino, Chiara Tani, Sander W. Tas, Maria G. Tektonidou, Anǵela Tincani, Ronald van Vollenhoven, Stefano Bombardieri, Gerd R Burmester, João Eurico Fonseca, Ilaria Galetti, É. Hachulla, Ulf Müeller-Ladner, Matthias Schneider, Vanessa Smith, Maurizio Cutolo, Marta Mosca, N. Costedoat‐Chalumeau

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueRMD Open · 2018
Typereview
Languageen
FieldMedicine
TopicSystemic Lupus Erythematosus Research
Canadian institutionsInstitute of Infection and Immunity
FundersEuropean Commission
KeywordsMedicineIntensive care medicineQuality of life (healthcare)DiseaseClinical PracticeLupus nephritisDisease managementPhysical therapyInternal medicineNursing

Abstract

fetched live from OpenAlex

Systemic lupus erythematosus (SLE) is the paradigm of systemic autoimmune diseases characterised by a wide spectrum of clinical manifestations with an unpredictable relapsing-remitting course. The aim of the present work was to identify current available clinical practice guidelines (CPGs) for SLE, to provide their review and to identify physicians' and patients' unmet needs. Twenty-three original guidelines published between 2004 and 2017 were identified. Many aspects of disease management are covered, including global disease management, lupus nephritis and neuropsychiatric involvement, management of pregnancies, vaccinations and comorbidities monitoring. Unmet needs relate with disease management of some clinical manifestations and adherence to treatment. Many patient's unmet needs have been identified starting with faster diagnosis, need for more therapeutic options, guidelines on lifestyle issues, attention to quality of life and adequate education.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.010
metaresearch head score (Gemma)0.020
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Meta-epidemiology (narrow), Insufficient payload (model declined to judge)
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.217
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0100.020
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0050.001
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0030.002
Research integrity0.0010.001
Insufficient payload (model declined to judge)0.0000.004

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.263
GPT teacher head0.527
Teacher spread0.264 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it