MétaCan
Menu
Back to cohort
Record W2906777138 · doi:10.1093/jamia/ocy164

Enrichment sampling for a multi-site patient survey using electronic health records and census data

2018· article· en· W2906777138 on OpenAlexfundno aff
Nathaniel D. Mercaldo, Kyle B. Brothers, David Carrell, Ellen Wright Clayton, John J. Connolly, Ingrid A. Holm, Carol R. Horowitz, Gail P. Jarvik, Terrie Kitchner, Rongling Li, Catherine A. McCarty, Jennifer B. McCormick, Valerie McManus, Melanie F. Myers, Joshua J. Pankratz, Martha J. Shrubsole, Maureen E. Smith, Sarah Stallings, Janet L. Williams, Jonathan S. Schildcrout

Bibliographic record

VenueJournal of the American Medical Informatics Association · 2018
Typearticle
Languageen
FieldSocial Sciences
TopicSurvey Methodology and Nonresponse
Canadian institutionsnot available
FundersNational Human Genome Research InstituteCanada Excellence Research Chairs, Government of CanadaNational Heart, Lung, and Blood InstituteCincinnati Children's Hospital Medical CenterChildren's Hospital of Philadelphia
KeywordsCensusSampling frameStratified samplingSampling (signal processing)Sampling designSample size determinationDemographyEthnic groupSample (material)Survey data collectionAmerican Community SurveyMedicineSurvey samplingGeographyHealth equityGerontologyStatisticsEnvironmental healthComputer sciencePublic healthPopulationMathematicsPolitical scienceSociologyPathology

Abstract

fetched live from OpenAlex

Objective: We describe a stratified sampling design that combines electronic health records (EHRs) and United States Census (USC) data to construct the sampling frame and an algorithm to enrich the sample with individuals belonging to rarer strata. Materials and Methods: This design was developed for a multi-site survey that sought to examine patient concerns about and barriers to participating in research studies, especially among under-studied populations (eg, minorities, low educational attainment). We defined sampling strata by cross-tabulating several socio-demographic variables obtained from EHR and augmented with census-block-level USC data. We oversampled rarer and historically underrepresented subpopulations. Results: The sampling strategy, which included USC-supplemented EHR data, led to a far more diverse sample than would have been expected under random sampling (eg, 3-, 8-, 7-, and 12-fold increase in African Americans, Asians, Hispanics and those with less than a high school degree, respectively). We observed that our EHR data tended to misclassify minority races more often than majority races, and that non-majority races, Latino ethnicity, younger adult age, lower education, and urban/suburban living were each associated with lower response rates to the mailed surveys. Discussion: We observed substantial enrichment from rarer subpopulations. The magnitude of the enrichment depends on the accuracy of the variables that define the sampling strata and the overall response rate. Conclusion: EHR and USC data may be used to define sampling strata that in turn may be used to enrich the final study sample. This design may be of particular interest for studies of rarer and understudied populations.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.076
metaresearch head score (Gemma)0.067
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.327
Threshold uncertainty score0.952

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0760.067
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0010.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.353
GPT teacher head0.517
Teacher spread0.164 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations6
Published2018
Admission routes1
Has abstractyes

Explore more

Same venueJournal of the American Medical Informatics AssociationSame topicSurvey Methodology and NonresponseFrench-language works237,207