Parents' experiences of diagnosis and care following the birth of a child with cleft lip and/or palate
Bibliographic record
Abstract
Background Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents, yet research has highlighted parental dissatisfaction and service-related issues. Aims To investigate the experiences of parents of children born with CL/P in relation to postnatal diagnosis and neonatal care. Method Data were collected from 470 parents using an online mixed-methods survey. Findings The majority of participants received their diagnosis and postnatal care from a midwife. Many (61%) were satisfied with their overall diagnostic experience; however, participants also perceived a lack of sensitivity, knowledge and empathy from hospital staff. Further issues were raised regarding the implications of a ‘delayed’ diagnosis including feeding difficulties. Conclusion Better training and support for midwives is recommended to address the challenges associated with the postnatal diagnosis and neonatal care of children with CL/P.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.003 | 0.013 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.002 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.002 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".