From Close Connections to Feeling Misunderstood: How Parents of Children with Autism Spectrum Disorder Perceive Support from Family Members and Friends
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
This qualitative study examines the social support of parents of children with ASD living in Québec, Canada. Eighteen parents described their social support experiences before and after their child’s first signs of ASD. The results of this study indicate that parents recall many unhelpful support experiences after their child’s first signs of ASD. The results also suggest that the parents’ support needs greatly outweigh the support they perceive from family and friends. To our knowledge, this study is the first to recognise that receiving adequate social support requires significant involvement from parents who find themselves having to compensate for the lack of knowledge about autism in the general population. The results of this study put forth the active role that parents play in the reshaping of their support relationships and highlight the changes that occur in these relationships over time. Implications for practice and future research are discussed.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.002 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it