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Record W4223578599 · doi:10.29173/cjfy29789

Mothers' Experiences of Obtaining a Diagnosis and Support for their Child with Autism Spectrum Disorder

2022· article· en· W4223578599 on OpenAlexvenueaboutno aff
Jesseca Perlman, Nina Howe

Bibliographic record

VenueCanadian Journal of Family and Youth / Le Journal Canadien de Famille et de la Jeunesse · 2022
Typearticle
Languageen
FieldPsychology
TopicFamily and Disability Support Research
Canadian institutionsnot available
Fundersnot available
KeywordsAutism spectrum disorderPsychologySocial communicationAutismDevelopmental psychologyPsychiatryClinical psychology

Abstract

fetched live from OpenAlex

Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder associated with communication, social, and behavioural challenges. A challenge faced by parents of a child with ASD is the process of obtaining a diagnosis and services for their child. In this collective case study, we interviewed six mothers in a large Canadian city who had at least one child with an ASD diagnosis. We asked about their experience obtaining a formal diagnosis, support, and how they perceived their children’s educational experience. Mothers highlighted the difficulties and barriers they encountered, as well the importance of support. Implications of such findings are discussed.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.003
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.303
Threshold uncertainty score0.963

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0030.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0010.000
Science and technology studies0.0010.001
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.022
GPT teacher head0.285
Teacher spread0.263 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations4
Published2022
Admission routes2
Has abstractyes

Explore more

Same venueCanadian Journal of Family and Youth / Le Journal Canadien de Famille et de la JeunesseSame topicFamily and Disability Support ResearchFrench-language works237,207