Questions to consider when caring for a child with a high risk of dying before adulthood
Bibliographic record
Abstract
The present article describes a fictional scenario depicting a patient requiring paediatric palliative care. Martin, a three-year-old boy, has a fatal progressive neurodegenerative disease. Martin lives with his two parents and five-year-old sister. He was diagnosed at two years of age during an investigation for psychomotor regression and balance problems. Martin’s condition has deteriorated since that time; he has progressive hypotonia, spasticity in his lower limbs and major loss of his abilities. He is also increasingly choking on his food. He was recently hospitalized for aspiration pneumonia with severe respiratory distress. He was given intravenous antibiotics and a gastrostomy tube was inserted. Although his convalescence was long, Martin has finally been able to return home. Before he left the hospital, a palliative care team met with him. The team also communicated with the community paediatrician to ensure that Martin would receive follow-up in his region and that resources would be available for him at home.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.010 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.006 | 0.003 |
| Scholarly communication | 0.002 | 0.005 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.007 | 0.008 |
| Insufficient payload (model declined to judge) | 0.009 | 0.002 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".