Living with Lupus in Ottawa, Ontario: An Exploration of Illness Narratives
Bibliographic record
Abstract
Lupus is a chronic illness that is characterized by a series of unpredictable flare-ups and is known to affect different sufferers to varying degrees.This thesis explores the many barriers and limitations that are suffered by these individuals both in the public sphere and in some more private aspects of life, as well as beginning to question the limitations of Canada's 'universal' health care system for the treatment and support of chronic illness sufferers.First, after a brief overview of illness narratives and how they can be used to analyze different aspects of illness, the social aspects of the illness experience are explored.Secondly, I examine the more structural aspects of this experience by looking at the barriers to care and other support services which those with lupus endure.By focusing on these social and structural aspects, this thesis demonstrates that in general, lupus sufferers experience varying degrees of delegitimization of their illness experience, sometimes resulting in a delay in care or inaccessibility of necessary services.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.005 | 0.013 |
| Meta-epidemiology (narrow) | 0.000 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.002 | 0.005 |
| Science and technology studies | 0.032 | 0.017 |
| Scholarly communication | 0.009 | 0.004 |
| Open science | 0.003 | 0.009 |
| Research integrity | 0.002 | 0.005 |
| Insufficient payload (model declined to judge) | 0.004 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".