P13 Communicating needs and features of IBD experiences (CONFIDE) survey: patient and health care professional perspectives
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
<h3>Introduction</h3> Communicating Needs and Features of IBD Experiences (CONFIDE) aims to further understand the experience and impact of symptoms on patients’ (pts’) lives and elucidate any gaps in communication between healthcare professionals (HCPs) and pts with moderate-severe ulcerative colitis (UC) and Crohn’s disease (CD) in the US, Europe, and Japan. These data focus on US UC pts and HCPs. <h3>Methods</h3> An online, quantitative, cross-sectional survey was conducted on HCPs (n=200) and pts with moderate-severe UC (using criteria from previous treatment experience, steroid use and/or hospitalization) (n=200) in the US between May (HCPs) and July (pts) 2021. The HCP survey included physicians (89%) and non-physician HCPs (11%) responsible for making prescribing decisions. <h3>Results</h3> The top 3 symptoms currently and ever suffered by pts (mean age: 40.4, 61.5% male) were diarrhea (62.5% and 74.0%), bowel urgency (47.0% and 61.5%), and increased stool frequency (38.5% and 57.5%). Blood in stool was reported by 27.0% pts as currently suffering, and 51.0% ever. Per HCPs (78.0% male), the top 3 pt-reported symptoms were diarrhea (73.5% ranked in top 3), blood in stool (69.0%), and increased stool frequency (37.5%). 24.0% HCPs reported bowel urgency in the top 3 pt-reported symptoms. Pts self-rated their disease severity as 10.5% (n=21) mild UC, 71.0% (n=142) moderate UC, 17.5% (n=35) severe UC, and not known 1.0% (n=2). Bowel urgency was more frequent with severe UC (62.9%, n=22) than mild-moderate UC (42.9%, n=70). 76.5% (n=153) pts were receiving advanced therapies; 46.4% currently experiencing bowel urgency. Only 38.2% pts felt comfortable reporting bowel urgency to their HCP, while 62.2% (n=23) reported feeling embarrassed talking about it. 75.5% (n=151) HCPs reported they proactively discussed bowel urgency at appointments. HCPs not proactively discussing bowel urgency (24.5%, n=49) expect the pt to bring it up (46.9%, n=23). <h3>Conclusions</h3> Bowel urgency is the second-most commonly reported symptom by moderate-severe UC pts, but is not among the HCP-perceived top 3. A substantial proportion of moderate-severe UC pts receiving advanced therapies continue to report bowel urgency. Communication gap between pts and HCPs was identified and highlights the under-appreciation of bowel urgency as an important symptom impacting pts’ daily life.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it