La voix des jeunes atteints de maladies rares ou peu fréquentes : un récit croisé de leur parcours scolaire
Bibliographic record
Abstract
Ce document fait partie d’une étude plus large sur les maladies rares et peu fréquentes et l’inclusion scolaire. La réponse éducative aux élèves souffrant de maladies rares, également appelées maladies orphelines, minoritaires ou à faible prévalence, implique une approche globale des domaines éducatif, sanitaire et psychosocial, ce qui constitue un défi pour les processus d’inclusion mis en oeuvre dans de nombreuses écoles. L’objectif de cette recherche est d’analyser quels processus éducatifs favorisent et entravent l’inclusion des élèves atteints de maladies rares dans les classes ordinaires. La méthodologie du récit biographique nous permet d’analyser en profondeur les expériences des processus d’inclusion à travers les voix de deux jeunes atteints de maladies peu fréquentes qui nous racontent leur parcours scolaire.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.001 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.001 |
| Science and technology studies | 0.003 | 0.002 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.009 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".