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THE STRUCTURE, RELIABILITY AND VALIDITY OF THE IMPACT QUESTIONNAIRE TO MEASURE QUALITY OF LIFE IN CHILDREN WITH INFLAMMATORY BOWEL DISEASE

2005· article· en· W4391470873 on OpenAlexaboutno aff
C A Davies, Janice Abbott, Anthony K Akobeng, Mangla Sood, Alvin G. Thomas

Bibliographic record

VenueJournal of Pediatric Gastroenterology and Nutrition · 2005
Typearticle
Languageen
FieldHealth Professions
TopicAdolescent and Pediatric Healthcare
Canadian institutionsnot available
FundersNational Institutes of Health
KeywordsMedicineInflammatory bowel diseaseReliability (semiconductor)Quality of life (healthcare)Measure (data warehouse)PsychometricsValidityDiseaseGerontologyClinical psychologyInternal medicineData mining

Abstract

fetched live from OpenAlex

Introduction: Coeliac disease (CD) is a complex genetic disorder.Besides the environmental factor gluten and the HLA-DQ2 and 8 proteins, other unknown genetic factors are involved.Several genome-wide screens have been performed to locate the regions with genes involved in CD.In the Dutch population this has led to the discovery of two susceptibility regions, 6q21-22 and 19p13 (CELIAC4).The region on 19p13 is only limited to 3.5 Mb, but since it is a region with a high density of genes, it still contains 92 candidate genes.Aim: We set out to fine-map this region with microsatellite markers and single nucleotide polymorphisms (SNPs) to search for association between genes and CD.Methods: We started with a cohort of 216 cases and 216 controls and expanded this to 311 cases and 540 controls.Microsatellites and SNPs were used.Results: Association testing using microsatellite markers has revealed a small region of interest of around 450 kb.Further fine-mapping with SNP shows association in a 150 kb region, encompassing a limited number of genes.Adding more SNPs led to the discovery of MYO9B as the gene on 19p13 most strongly associated to CD.This gene, which is a singleheaded motor myosin, shows association in its 3' part.This part of the gene contains the most interesting domains, which also differentiate the role of this myosin from the other family members.The Rho-Gap and Dag-Pe domains indicate that this gene is involved in signal transduction.We are now elucidating the specific role of this gene in signal transduction and trying to incorporate it in our models for CD.Conclusion: Finemapping the Dutch CD linkage region on chromosome 19p13 has led us to the gene MYO9b which is associated with the disease.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.013
metaresearch head score (Gemma)0.024
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.013
Threshold uncertainty score0.068

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0130.024
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.001
Bibliometrics0.0020.002
Science and technology studies0.0000.001
Scholarly communication0.0010.001
Open science0.0010.001
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.025
GPT teacher head0.345
Teacher spread0.321 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2005
Admission routes1
Has abstractyes

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