Whiteout: a social history of sickle cell disease in Ontario, Canada
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
What does it mean to develop health policies and services for diseases that are socially constructed as racialized in a country that continuously erases race?Sickle Cell Disease (SCD), the world's most common genetic disorder, is receiving increased policy attention as a multi-system blood disorder that disproportionately impacts Black communities in the province of Ontario, Canada.In January 2023, Ontario Health launched the quality standard, Sickle Cell Disease: Care for People of All Ages (SCD Quality Standard), positioning this document as an expression of the Province's commitment to Black health.While the SCD Quality Standard aims to redress institutional neglect, it is vulnerable to claims that it is ahistorical.This commentary therefore seeks to historicize the SCD Quality Standard by tracing the social history of SCD in Ontario during welfare state expansion and devolution.In doing so, this commentary locates the SCD Quality Standard within Canada's colonial master narrative as a white liberal democracy.Concepts of bounded justice are drawn on to examine Ontario's racialized responses to SCD and the limitations of health policy-making for social justice.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.001 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.004 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it