The Behaviours in Dementia Toolkit: A descriptive study on the reach and early impact of a digital health resource library about dementia-related mood and behaviour changes (Preprint)
Bibliographic record
Abstract
BACKGROUND Dementia is a syndrome with a high global prevalence that includes a number of progressive diseases of the brain affecting various cognitive domains such as memory and thinking, and the performance of daily activities. It manifests as symptoms across a number of domains, which often include significant mood and behaviour changes. Changed moods and behaviours due to dementia may reflect distress, they are highly varied, and may be stressful for both the person living with dementia and their informal and formal carers. To provide dementia care support specific to mood and behaviour changes, the Behaviours in Dementia Toolkit website was developed using human-centered design principles. The Behaviours in Dementia houses a user-friendly, digital library of over 300 free, practical and evidence-informed resources to help all care partners better understand and compassionately respond to behaviours in dementia so they can support people with dementia to live well. OBJECTIVE To determine whether the development and implementation of the Behaviours in Dementia Toolkit was successful in creating website users and to understand the platform’s early impact. METHODS A multi-method, descriptive study was conducted in the early post-launch period to examine reach, engagement, knowledge change, behaviour change, and website impact outcomes and measures via Google Analytics and an electronic survey of website users. RESULTS From February 4 to March 31, 2024 there were 76,890 unique visitors to the Behaviours in Dementia Toolkit from 109 countries. Of 76,890 unique visitors to the Behaviours in Dementia Toolkit during this period, 16,626 were engaged users (21.6%) from 80 countries. The highest number of unique engaged users were from Canada (n=8,124) with an engagement rate of 37.7%. From March 5, 2024 to March 31, 2024, 100 electronic surveys were completed by website users and included in the analysis. Website users indicated that the Toolkit validated or increased their dementia-care knowledge, beliefs, and activities (82.0%) and they reported that the website validated their current care approaches or increased their ability to provide care (78.0%). Further, 77.0% of respondents indicated that they intend to continue using the Toolkit and 81.6% said they would recommend it to others to review and adopt. CONCLUSIONS The Behaviours in Dementia Toolkit is a promising tool for sharing practical and evidence-informed information resources to support people experiencing dementia related mood and behaviour changes. Early evaluation of the website has demonstrated significant reach and engagement with users in Canadian and internationally. Survey data also demonstrated high ratings of website relevance, feasibility, intention to use, knowledge change, practice support, and its contribution to dementia guidance.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.004 | 0.011 |
| Meta-epidemiology (narrow) | 0.000 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.001 | 0.002 |
| Science and technology studies | 0.002 | 0.001 |
| Scholarly communication | 0.003 | 0.002 |
| Open science | 0.001 | 0.002 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.003 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".