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Record W4399515210 · doi:10.1080/19315864.2024.2361636

“You Can't Have a Window visit”: The Experience of Mothers of an Adult Child with Autism Spectrum Disorder and an Intellectual Disability Living in Supported Residential Accommodations During the Pandemic

2024· article· en· W4399515210 on OpenAlexafffund
Micheline Senia, Kirsten Penrose, Chad A. Sutherland, Sean Horton

Bibliographic record

VenueJournal of Mental Health Research in Intellectual Disabilities · 2024
Typearticle
Languageen
FieldPsychology
TopicFamily and Disability Support Research
Canadian institutionsUniversity of Windsor
FundersMitacs
KeywordsAutism spectrum disorderPandemicAutismPsychologyIntellectual disabilityCoronavirus disease 2019 (COVID-19)Developmental psychologyPsychiatryMedicine

Abstract

fetched live from OpenAlex

Introduction The COVID-19 pandemic has impacted people around the world, partly due to the restrictions it imposed on social interactions. This impact was felt to a great extent by persons with autism spectrum disorder (ASD) and an intellectual disability (ID) who rely on 24-hour support to live in the community, and by their mothers, who remain caregivers and advocates when their child has left the family home.Methods This qualitative study investigated the impact of public-health restrictions on the lived experience of ten mothers of adult children living in supported residential accommodations (SRA), through semi-structured interviews informed by a strengths-based perspective.Results Thematic analysis revealed three main themes: importance of communication, mental health and well-being, and navigating challenges.Conclusion Participant accounts not only revealed the effect of restrictions on mental health and well-being, but also, the need to recognize the principle of linked lives in contingency planning for future crises.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.007
metaresearch head score (Gemma)0.004
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies, Insufficient payload (model declined to judge)
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.155
Threshold uncertainty score0.999

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0070.004
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0000.005
Scholarly communication0.0000.001
Open science0.0010.000
Research integrity0.0000.002
Insufficient payload (model declined to judge)0.0020.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.077
GPT teacher head0.433
Teacher spread0.356 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2024
Admission routes2
Has abstractyes

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