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Record W4402275940 · doi:10.16993/sjdr.1102

Recognizing Past and Present Experiences: Toward a Person-Oriented and Trauma-Informed Approach to Autism Research

2024· article· en· W4402275940 on OpenAlex
Jad Brake, Susan Cox, Pamela Pierce Palmer

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueScandinavian Journal of Disability Research · 2024
Typearticle
Languageen
FieldNeuroscience
TopicAutism Spectrum Disorder Research
Canadian institutionsUniversity of British Columbia
Fundersnot available
KeywordsAutismPsychologyDevelopmental psychologyClinical psychologyPsychotherapist

Abstract

fetched live from OpenAlex

This paper draws on a Person-Oriented Research Ethics model in conjunction with a Trauma-Informed Approach to suggest a methodological framework and provide practical recommendations to guide research involving autistic people. Adverse and traumatic experiences are common in autism, and they add to autistic persons’ vulnerability in research. Participation in research can lead to further harm and re-traumatization if appropriate care is not taken to mitigate this possibility. Accordingly, this work analyzes the potential influences and ethical implications of negative experiences and traumatic histories for the autism research process. It also demonstrates the importance of adding a trauma-informed lens to a Person-Oriented Research Ethics model in research involving autistic individuals. Despite the high prevalence of trauma in autism, research addressing the implementation of a Trauma-Informed Approach or emphasizing the significance of applying trauma-informed principles to autism research remains notably scarce and overlooked.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.011
metaresearch head score (Gemma)0.004
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies, Scholarly communication, Research integrity
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.218
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0110.004
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.004
Science and technology studies0.0010.004
Scholarly communication0.0010.001
Open science0.0010.001
Research integrity0.0000.003
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.238
GPT teacher head0.432
Teacher spread0.195 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it