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Record W4404809080 · doi:10.1370/afm.22.s1.6081

People living with chronic pain face multiple difficult decisions leading to high level of decisional conflict

2024· article· en· W4404809080 on OpenAlex
Florian Naye, Maxime Sasseville, Chloé Cachinho, Yannick Tousignant‐Laflamme, Thomas Gérard, Simon Décary

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenuePain Management · 2024
Typearticle
Languageen
FieldEconomics, Econometrics and Finance
TopicHealth Systems, Economic Evaluations, Quality of Life
Canadian institutionsnot available
Fundersnot available
KeywordsFace (sociological concept)Chronic painMedicinePhysical medicine and rehabilitationPhysical therapy

Abstract

fetched live from OpenAlex

<h3>Context:</h3> Implementing shared decision-making is an international priority in chronic pain care, especially for primary care clinicians. <h3>Objective:</h3> We sought to understand decisional needs of people living with chronic pain in Canada. <h3>Study design and Analysis:</h3> Informed by the Checklist for Reporting Of Survey Studies, we conducted a population-based cross-sectional online survey across the 10 Canadian provinces. We reported national prevalence of decisional conflict. We identified difficult decisions in terms of diagnosis, treatment, daily living, and consultation and stratified results using respondents’ most difficult decision. We determined assumed and preferred role during the decision-making process as well as their congruence. <h3>Setting or Dataset:</h3> We gathered data from random samples registered within the Leger Marketing panel (i.e., a panel of 500,000 representative members of Canadian society with Internet access). <h3>Population studied:</h3> We recruited adults living with chronic noncancer pain across Canadian provinces. <h3>Outcome Measures:</h3> Based on the Ottawa Decision Support Framework, we collected data on difficult decisions faced when interacting with health care providers, the Decisional Conflict Scale (DCS≥25 or DCS≥37.5) and the Control Preferences Scale (assumed and preferred role). <h3>Results:</h3> We recruited 1,649 respondents with diverse socio-demographic profiles. Mean age was 51.8 years (SD=16.3). Half were man (51%), most lived in urban areas (88%), and pain duration ranged from 3 months to 59 years. We observed that 97% of respondents faced at least one difficult decision across their care pathways. We found thirty-six difficult decisions related to medical consultation, diagnosis, treatment, and daily life. Half (49%) of respondents made their most difficult decision with a primary care physician. Nationally, two third (69%) of respondents experienced decisional conflict (DCS score&gt;25) and one third (34%) clinically significant decisional conflict (DCS&gt;37.5). Two-thirds (68%) of respondents self-reported having a collaborative role during their decision while 76% wanted this role. <h3>Conclusions:</h3> People living with chronic pain have unmet decisional needs limiting optimal decisions to manage their chronic pain. Our findings will guide development of shared decision-making interventions to reduce decisional conflict at a national level, especially to support primary care where most discussions about difficult decisions occur.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.031
metaresearch head score (Gemma)0.007
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Meta-epidemiology (narrow), Insufficient payload (model declined to judge)
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.861
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0310.007
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.340
GPT teacher head0.401
Teacher spread0.061 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it