From “the Tragic Self” to “the Empowered Self”: How Leisure Spaces Can Foster Narrative Agency for People with Lived Experience of Dementia
Bibliographic record
Abstract
Harmful cultural narratives equate dementia with a loss of self, citizenship, narrative agency. Although leisure activities are widespread in dementia programs, less attention is paid to leisure’s social justice orientation and potential to resist dominant narratives. Raising the Curtain on the Lived Experiences of Dementia was a five-year community-based participatory research study, guided by the values and practices of social citizenship (Bartlett & O’Connor, Citation2007, Citation2010). The project explored how individuals living with dementia made sense of their lived experiences individually and collectively. Analysis of participants’ accounts of their dementia revealed the tragic self and the empowered self as two over-arching themes, showing how participants’ both adopted and resisted dominant dementia narratives. Insights suggest leisure spaces have potential to foster the narrative agency of individuals living with dementia to enable expression of the fullness of their experiences including powerlessness and agency; uncertainty and certainty; dread and joy; conformity and resistance.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.009 | 0.011 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.014 | 0.032 |
| Scholarly communication | 0.014 | 0.012 |
| Open science | 0.002 | 0.024 |
| Research integrity | 0.002 | 0.004 |
| Insufficient payload (model declined to judge) | 0.004 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".