QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND
Bibliographic record
Abstract
Family quality of life (FQOL) is a concept that is gaining increasing importance in family support programmes. However, for some countries, this concept has been insufficiently explored in relation to families with children with intellectual and developmental disabilities. The aim of this study was to ascertain the perceived QOL of siblings of children with profound intellectual and multiple disabilities (PIMD) living in Poland. The study relies on a qualitative research approach. Semi-structured interviews were conducted with 18 siblings aged 6 to 15, followed by thematic analysis. The siblings identified the following nine domains as dimensions that impacted their QOL: joint activities, mutual understanding, private time, acceptance, forbearance, effect on well-being, exchanging experiences, social support, and dealing with the outside world. The children described both positive and negative experiences, indicating that having a sibling with intellectual and developmental disabilities affected their QOL in diverse ways.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.001 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.001 | 0.000 |
| Open science | 0.000 | 0.001 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".