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Record W4407753242 · doi:10.3233/shti250009

Canadians and Digital Health Data: Privacy Experiences and Perspectives

2025· article· en· W4407753242 on OpenAlexaff
Iman Kassam, Jessica Kemp, Sheng Chen, Clement Ma, Daria Ilkina, Janet Guervara, Abigail Carter-Langford

Bibliographic record

VenueStudies in health technology and informatics · 2025
Typearticle
Languageen
FieldSocial Sciences
TopicPrivacy, Security, and Data Protection
Canadian institutionsCanada Health InfowayUniversity of TorontoCentre for Addiction and Mental Health
Fundersnot available
KeywordsInternet privacyInformation privacyPrivacy policyPublic healthDigital healthPublic relationsHealth dataBusinessPolitical sciencePsychologyComputer scienceMedicineHealth careLawNursing

Abstract

fetched live from OpenAlex

Recent policy recommendations on the use of health data call for an understanding of privacy experiences and perspectives. A secondary analysis of a national survey was conducted to characterize public experiences views on digital health (n=2010). This study found that 69.8% of participants are unaware of health privacy laws yet 71.8% were confident in protecting their online privacy. These variables were significantly associated with beliefs that their privacy was adequately protected. This study reinforces the discourse that public engagement in building awareness of the law and confidence in data protection will be critical in fostering trust in health privacy safeguards.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.002
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.270
Threshold uncertainty score0.911

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.002
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0010.002
Scholarly communication0.0000.001
Open science0.0000.001
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.066
GPT teacher head0.396
Teacher spread0.330 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes1
Has abstractyes

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