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Record W4409147905 · doi:10.1080/09638288.2025.2481980

Developing consensus among people living with pain on what health professionals should know about their lived experiences

2025· article· en· W4409147905 on OpenAlexafffund
Emilie Houston, Peter Stilwell, Lynn Cooper, Lesley Singer, Geoff Bostick, André Bussières, Fatima Amari, Timothy H. Wideman

Bibliographic record

VenueDisability and Rehabilitation · 2025
Typearticle
Languageen
FieldMedicine
TopicMusculoskeletal pain and rehabilitation
Canadian institutionsUniversité du Québec à Trois-RivièresUniversity of AlbertaMcGill University
FundersCanadian Institutes of Health Research
KeywordsHealth carePsychologyDelphi methodPain assessmentActivities of daily livingMedicineQualitative researchNursingMedical educationPain managementPhysical therapySociology

Abstract

fetched live from OpenAlex

PURPOSE: To address suboptimal pain competency in undergraduate health professional education programs, several organizations are now including people with chronic pain in courses to teach students about the experience of living with pain. This study aimed to achieve consensus among people living with pain regarding what health professions students should learn about the experience of pain. MATERIALS AND METHODS: A participatory three-round Delphi process was used, where 27 people living with pain voted on sub-themes about the experience of pain. Sub-themes achieving at least 75% agreement were approved, while others were revised and presented again in subsequent rounds. Inductive content analysis of the approved sub-themes was conducted, and participants endorsed the final product. RESULTS: A total of 39 sub-themes were approved, grouped into seven higher-order themes, including: the personal impacts of pain; harmful effects of stigma; adapting to living with pain; managing pain; connections between pain and mental health; challenges in pain assessment and diagnosis; and expectations from healthcare. CONCLUSIONS: The consensus themes are considered relevant across various health professions and can serve as a valuable aid for pain educators to assess their teaching and guide the involvement of people living with pain in educational activities.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.098
metaresearch head score (Gemma)0.126
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.098
Threshold uncertainty score0.518

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0980.126
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0010.001
Bibliometrics0.0030.002
Science and technology studies0.0070.011
Scholarly communication0.0060.008
Open science0.0030.014
Research integrity0.0040.007
Insufficient payload (model declined to judge)0.0020.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.021
GPT teacher head0.335
Teacher spread0.314 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes2
Has abstractyes

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