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PRESCRIBING OF MEDICATIONS WITH PHARMACO-GENETIC GUIDANCE IN CHILDREN AND ADOLESCENTS WITH SYSTEMIC LUPUS ERYTHEMATOSUS (SLE)

2025· article· en· W4410513167 on OpenAlexaffvenue
Voke Ewhrudjakpor, Nicholas D. Gold, Daniela Domínguez, Anjali Jain, Andrea Knight, Deborah M. Levy, Ruud H J Verstegen, Linda T. Hiraki

Bibliographic record

VenueThe Journal of Rheumatology · 2025
Typearticle
Languageen
FieldMedicine
TopicSystemic Lupus Erythematosus Research
Canadian institutionsInstitute for Clinical Evaluative SciencesSickKids FoundationHospital for Sick ChildrenPublic Health OntarioUniversity of Toronto
Fundersnot available
KeywordsMedicineLupus erythematosusSystemic diseaseSystemic lupus erythematosusConnective tissue diseaseIntensive care medicineDermatologyImmunologyPediatricsImmunopathologyInternal medicineAutoimmune diseaseAntibodyDisease

Abstract

fetched live from OpenAlex

PV163 / #410 Poster Topic: AS18 - Pediatric SLE Background/Purpose Pharmacogenetics (PGx) focuses on the effect of genetic variations on metabolism and response to medications. At this moment, over 100 medications have clinical practice guidelines that provide recommendations on how genetic variations can be incorporated into clinical decision making to improve efficacy and prevent adverse drug reactions. This study aims to determine how often medications with PGx guidelines are prescribed within a cohort of children and adolescents diagnosed and followed for systemic lupus erythematosus (SLE) at the Hospital for Sick Children Lupus Clinic. Methods We completed a retrospective cohort study of patients diagnosed and followed for SLE at SickKids between January 1997 and December 2017. All patients met ACR, SLICC, or EULAR/ACR SLE classification criteria and had clinical and medication data in the dedicated lupus database. We created a list of medications with clinical PGx guidelines (eg, Clinical Pharmacogenetics Implementation Consortium [CPIC] and Dutch Pharmacogenetic Working Group [DPWG]) or clinical PGx recommendations in FDA-approved drug labels using the Pharmacogenomics Knowledgebase ( www.pharmgkb.org ). We used descriptive statistics to calculate the number of prescriptions of medications with PGx guidance, the proportion of the total prescriptions to PGx prescriptions, and the time to the first and second instance of PGx prescribing following SLE diagnosis using Kaplan-Meier analysis. Characteristics of the cohort such as age, sex, ethnicity, and SLE manifestations were also extracted and compared between people prescribed and not prescribed PGx medications (P < 0.05). Results Our cohort included 616 children and adolescents with SLE. The cohort was 80% female, with a median age at diagnosis of 14 years (IQR 11-15), with the largest reported ethnic group being Europeans (38%). The most common SLE manifestations were malar rash (79%), lymphopenia (68%), and the presence of anti-dsDNA antibodies (66%). Patients prescribed a PGx medication within the first year after diagnosis showed a statistically increased prevalence of neuropsychiatric, renal, and musculoskeletal manifestations, and hypocomplementemia (Table 1). Patients were prescribed 219 distinct medications, including 43 with PGx guidance. The most commonly prescribed PGX medications were azathioprine (42%), omeprazole (33%), and lansoprazole (15%). Of the 616 patients, 413 (67%) were prescribed at least 1 PGx medication, with most individuals receiving prescriptions within the first year of SLE diagnosis (n=290, 47%). Table 1: Cohort Demographic and Feature Characteristics (a) Sex, SLE features, and ethnicity were analyzed with a Fisher’s exact test, age was analyzed with Wilcoxon rank-sum test. (*) Denotes statistical difference between the groups (p < 0.05) Conclusions In a large cohort study of children and adolescents with SLE, we observed that 68% of patients were prescribed a medication with PGx guidance during the course of their disease, with nearly half of these patients being prescribed within the first year of SLE diagnosis. Future plans include expanding the cohort and follow-up by 5 years and completing analyses of genetic variants for the most commonly prescribed PGx medications using Stargazer, a star allele calling software. Our research aims to provide a rationale for the use of PGx in individualized care for children and adolescents with SLE.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.003
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.015
Threshold uncertainty score0.029

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0010.003
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.001
Bibliometrics0.0010.002
Science and technology studies0.0000.000
Scholarly communication0.0010.001
Open science0.0000.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0020.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.009
GPT teacher head0.277
Teacher spread0.267 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2025
Admission routes2
Has abstractyes

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