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Record W4412738287 · doi:10.7202/1118903ar

Respect for Autonomous Risky Decisions and People with IDD: Prioritizing Healthcare Provider Trustworthiness

2025· article· en· W4412738287 on OpenAlex
Andria Bianchi

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.
venuePublished in a venue whose home country is Canada.

Bibliographic record

VenueCanadian Journal of Bioethics · 2025
Typearticle
Languageen
FieldHealth Professions
TopicPatient-Provider Communication in Healthcare
Canadian institutionsPublic Health OntarioToronto Rehabilitation InstituteUniversity of TorontoUniversity Health Network
Fundersnot available
KeywordsTrustworthinessHealth careBusinessComputer scienceRisk analysis (engineering)Internet privacyEconomics

Abstract

fetched live from OpenAlex

Autonomy is a primary guiding healthcare ethics principle in Western liberal societies. Generally speaking, the principle means that we ought to respect individuals’ decisions in relation to themselves, even when such decisions are risky from some perspectives. The principle of autonomy may be of particular importance when thinking about marginalized populations whose ability to make autonomous decisions, and to have such decisions respected (by enabling the autonomous decision to occur through positive or negative means), was largely, historically non-existent. One of these populations is people with intellectual and developmental disabilities (IDD). When it comes to a person with IDD making an autonomous risky decision, a clinician may respect their decision because of the typical weight and priority given to the principle of autonomy. However, this paper argues that a person with IDD’s autonomous risky decision related to care provision should only be respected insofar as the clinician has demonstrated trustworthiness in an effort to obtain trust. In other words, I argue that unless a clinician has demonstrated that they are trustworthy, then a risky autonomous decision related to care provision should not be immediately respected when working with a person with IDD. The reason that a risky autonomous decision should not be respected unless there is demonstrated trustworthiness is because of how trustworthiness may influence decision-making insofar as trust is gained. If a person with IDD makes a risky decision without finding their provider to be trustworthy, then their decision may be unnecessarily motivated by lack of trust. There are good reasons that a person with IDD may not find their clinicians to be trustworthy, hence the rationale for ensuring the intentional demonstration of trustworthiness before respect for autonomous risky decision-making.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.004
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.608
Threshold uncertainty score0.999

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.004
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0030.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.002
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.207
GPT teacher head0.440
Teacher spread0.233 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it