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Record W4414161842 · doi:10.1177/09697330251366601

Relational autonomy in pediatric healthcare: A scoping review

2025· review· en· W4414161842 on OpenAlexaff
Amarens Matthiesen, Nicole Drumm, Alison Gerlach, Donna Koller, Tieghan Killackey

Bibliographic record

VenueNursing Ethics · 2025
Typereview
Languageen
FieldMedicine
TopicEthics and Legal Issues in Pediatric Healthcare
Canadian institutionsUniversity Health NetworkUniversity of VictoriaYork UniversityUniversity of Toronto
Fundersnot available
KeywordsAutonomyOperationalizationCLARITYContext (archaeology)EmbeddednessHealth carePopularitySystematic review

Abstract

fetched live from OpenAlex

BackgroundThe concept of relational autonomy has gained popularity for accentuating the social embeddedness of autonomy. In pediatrics, relational autonomy provides a framework for conceptualizing the complexities of healthcare processes, such as shared decision-making and children's transitions to adult care systems. However, a lack of clarity exists regarding how to define and operationalize relational autonomy in pediatric healthcare. To our knowledge, no reviews of literature have been conducted to better understand this concept in pediatrics and guide further research.Research AimThe purpose of this scoping review was to describe literature focusing on relational approaches to autonomy in the context of pediatric healthcare.Research designA scoping review methodology proposed by Arksey and O'Malley and the Joanna Briggs Institute guided this review. Seven databases were searched for literature published between 2004 and 2024. Out of 2895 potentially relevant publications, a total of 28 articles were included for review.Ethical ConsiderationsThis study was conducted and reported in accordance with recognized scientific scoping review guidelines.FindingsVarious terms were used to describe relational approaches to autonomy in pediatrics. These terms shared a common goal of promoting a more holistic view of children and their decision-making processes in pediatric care. Most articles relied on adult perspectives (e.g., caregivers and healthcare providers) to shed light on shared decision-making processes. The perspectives of children and nurses were underrepresented in the literature, especially in the context of the Global South.ConclusionAdditional research is needed to capture the lived experiences of a wider range of individuals with developing and exercising autonomy using diverse research methods. As the perspectives of nurses and children remain excluded from literature, new knowledge on their experiences with autonomy can inform the delivery of care that is ethically and morally sound.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.005
metaresearch head score (Gemma)0.006
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow), Research integrity
Consensus categoriesResearch integrity
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.395
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0050.006
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0030.001
Bibliometrics0.0010.002
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0030.012
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.387
GPT teacher head0.562
Teacher spread0.175 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designSystematic review
Domainnot available
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

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