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Adaptation of a Serious Illness Communication Training Intervention for the Rwandan Context

2025· article· en· W4415445966 on OpenAlexafffund
Rebecca DeBoer, Pacifique Uwamahoro, Diane A. Ndoli, Eulade Rugengamanzi, Augustin Mulindabigwi, Jean Bosco Bigirimana, Tumusime Musafiri, Sarah Slater, Katherine Van Loon, Rebecca L. Sudore, Wendy G. Anderson, Justin J. Sanders, Vincent K. Cubaka

Bibliographic record

VenueJournal of Pain and Symptom Management · 2025
Typearticle
Languageen
FieldHealth Professions
TopicPatient-Provider Communication in Healthcare
Canadian institutionsMcGill University
FundersNational Cancer InstituteNational Palliative Care Research CenterUniversity of California, San FranciscoRéseau de cancérologie RossyCanadian Institutes of Health ResearchFonds de recherche du QuébecConquer Cancer FoundationMcMaster UniversityOregon Health and Science UniversityNational Institute on AgingBristol-Myers SquibbNational Institutes of Health
KeywordsPsychological interventionAdaptation (eye)Context (archaeology)Intervention (counseling)Training (meteorology)

Abstract

fetched live from OpenAlex

CONTEXT: Communication skills are essential in cancer care, and international guidelines recommend communication training for all cancer care providers. Both clinical communication and training methods are influenced by culture. As oncology and palliative care expand globally, procedures are needed to adapt evidence-based communication training for diverse contexts. OBJECTIVE: To adapt a serious illness communication training intervention in Rwanda. METHODS: Guided by the Cultural Adaptation Process model, we conducted focus groups to understand communication training needs and gather feedback on a U.S. tool, the Serious Illness Conversation Guide (SICG). Based on identified needs, we made initial adaptations to an SICG-based training, incorporating tools from another U.S. program (VitalTalk). We piloted this training with 14 clinical psychologists, using lecture, demonstration, scripted roleplay, and small group discussion. Effectiveness was assessed through 5-point scales and qualitative feedback. RESULTS: Seventeen interdisciplinary oncology providers participated in one of three focus groups. While some had received lectures on communication, all believed additional training is needed. They endorsed the approach of adapting an international program rather than creating a Rwandan training de novo. Based on their input, we adapted and piloted a training that focused on three skills: 1) Set up the conversation and assess understanding; 2) Share information via a succinct "headline;" 3) Respond to emotion. Training methods received mean scores of 4.0 to 4.33 (5 = most effective). Further modifications were suggested to improve cultural concordance. CONCLUSION: Despite vast cultural differences, communication training interventions developed in the U.S. can be effectively adapted in African contexts through co-creation with local providers.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.005
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.010
Threshold uncertainty score0.034

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0020.005
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0010.001
Bibliometrics0.0000.000
Science and technology studies0.0030.001
Scholarly communication0.0010.001
Open science0.0010.003
Research integrity0.0010.002
Insufficient payload (model declined to judge)0.0100.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.131
GPT teacher head0.408
Teacher spread0.278 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations2
Published2025
Admission routes2
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